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Woman with knee high boots standing next to a railing, she is visable up to her waist. The backlighting is pink and blue

Disability and sex lessons from a striptease artist

By Sex & disability, Undressing Disability

“What stripping for people with disabilities taught me about sex”

Ruth Ramsay is a sex educator and coach, but for over a decade was a striptease artist ‘Solitaire’. Here she shares the lessons that performing for audiences with disabilities has taught her about disability and sexual needs.

“Right now I feel on top of the world!”

Peeping out through the stage door, I see the audience are ready for the show to begin.

I’m performing at Extreme Burlesque, a striptease show for people with disabilities. I’m delighted to see many of the women in the audience are dressed-up, with feather boas draped over wheelchairs and sparkly makeup. It’s always more fun as a performer when the audience is into it.

Chatting to some of the ladies later, I become aware there is more at play here than a fun night out. “Thank you for this” one says, gesturing to the glittery corset her carer helped her to put on earlier. “I never get the opportunity to dress like this. I never get to act as sexy as I am inside. Right now I feel on top of the world!”

I hadn’t thought before about the day-to-day barriers people with disabilities may face to express their sexuality. There was also the deeper issue of ‘desire – ability’*: we receive messages from media, culture, caregivers etc about what bodies are approved in our society to feel desire (as well as which are desirable). This nuance was something I had never been aware of before.

Importance of independence black and white image of a woman upside down on a pole. There is smoke to the left of the picture

I’m stood by the stage curtain, ready to step out onto the stage and start my show, and I’m feeling emotional.

It’s a Sunday afternoon at a strip pub in London. I have just been talking to the friend of a young guy in the audience who I’ve seen before on Sunday shifts. He has cerebral palsy, uses a wheelchair, and has limited control over his movements and vocalisation. His friend lines up pound coins on the edge of the table (this is a venue where we collect £1 from each audience member in a beer jug before each show), and he has just enough mobility to knock them into the jug if we hold it just below the edge of the table.

This same friend has just explained his Sunday visits to me. The disabled mans mum – his main carer – thinks he’s at a social club for people with disabilities, with a membership fee. She’s happy to pay, as he comes back so happy and invigorated. She doesn’t know he is visiting a strip pub and the money is going to dancers. “This is the highlight of his month. It’s what keeps him going the rest of the time,” his friend tells me.

Before this I hadn’t properly appreciated before, sexual energy as such an uplifting and healing force: the power of being recognised as a sexual being, welcomed and accepted in an environment that’s all about erotic energy.

Night of The Senses

I’m gazing around me in amazement, my eyes drinking in the scene of naked skin, moist lips, kinky and fabulous outfits and sex acts happening in full sight…

I am at the Night of The Senses, the after-party to the annual Erotic Awards. It’s early in my stripping career, and I’ve just performed in the Awards show. Proceeds go to Outsiders, a charity which helps people with disabilities find friends, romance and partners. The Night is my first-ever raunchy anything-goes party.

Skimpily-dressed people are kissing, caressing and more; there’s leather and whips and toys; the dancefloor is a mass of motion, smiles and laughter. And about half of this sexy crowd have disabilities.

It was an important lesson to me early on, that having a disability in no way necessarily impairs a person’s ability to want or enjoy sexual pleasure. Access to such pleasure should not be dependent on a conventionally ‘functional’ or attractive body. “Of course!”, I hear Undressing Disability readers shout. But nearly 20 years later, it still feels mainstream awareness is lagging behind.

“What, is it off? Already???!”

Blue and pink lit image of aa music deck with a dancer in the backgroundMy final lesson brings us back to my Extreme Burlesque. During my striptease I am allowed off the stage to roam around the audience.

At mainstream venues like this I’d sometimes choose a guy to undo my bra clasp. Usually this involved quite a bit of fumbling and took some time! I admit that in that moment, I assumed that it would take an audience member here a lot longer.

I chose a guy who had the mobility in his arms and hands to attempt the task, and was sat where I could rest on the edge of a table while he took his time. He had a respectful vibe – I didn’t want to get groped – and looked like he had a sense of humour.

Sashaying over to him, I gave him a big smile, then turned my back and pointed to my bra clasp, with a “will you undo this for me?” motion. I settled down in front of him, ready for us all (him included) to have a laugh as he tried to undo it, looking back over my shoulder at him.

He gave me a cheeky grin, then with one hand quickly reached up, pinched the clasp between finger and thumb and pinged it off. It was undone in under a second. Never before (or since) has anyone done that so expertly.

Lesson – do not assume someone’s level of sexual experience and expertise based on them having a disability!

Concluding thoughts

These lessons served me well during my career as a stripper, and continue to now I am a coach. I was taught the healing power of sexual energy; made aware of how many people are denied access to it; saw the importance of feeling desire-able (as well as desirable); and learnt to never make assumptions. Plus so much more that there isn’t space to mention here.

Without these lessons, I might have had fun as a dancer for a few years, then left that world behind. Instead, working with sexual energy became my life’s passion and purpose.

Thank you to all the diverse communities – including disabled, trans, ageing and non-binary – who continue to teach me so much and expand my view of sexual expression.

 

Find out more about Ruth and contact her via her website.

 

*This concept has been brought into clearer words for me by the author and therapist Lucie Fielding, in her amazing book ‘Trans Sex – Clinical Approaches To Trans Sexualities And Erotic Embodiement’. Find the book here

 

Read more like this on our UndressingDisability blog 

Professional advice on sex and intimacy for care home staff

By Undressing Disability

At the Love Lounge we often have emails from support staff and carers who work with disabled people about sex workers. Emails like this…

We have a resident who is 28 years old and is severely physically disabled, he doesn’t have a learning impairment.  He really wants a loving relationship but has a lot of anxieties around sex and intimacy.  He is unsure of whether he can physically engage in ‘traditional sex’ and is unable to masturbate himself.  His anxieties over this have led to him being very depressed and reluctant to date or develop a relationship with someone.  He has had counselling, however said he still doesn’t know about how his body will work or not during sex. He has decided he wants to employ the services of a sex worker to explore what he can and cannot do sexually.  Can you please point us in the right direction of where we can find a sex worker who is experienced with working with disabled people?

Let’s look further…

Now let’s call the above person Chris.  It may be that a sex worker would meet Chris’s needs and would be the best course of action. But sometimes, a person may ask for a sex worker because they are not aware of the other options available to them. We know that Chris has been feeling very anxious about sex which has had a really negative impact on him affecting his mental health. What happens if Chris doesn’t have a positive first sexual experience (through no fault of the sex worker)? This could leave Chris with inaccurate beliefs about what he can do sexually and also add to his emotional distress.

Options available

In this case, it may be useful for Chris to see a sex surrogate, who is working in partnership with a sex therapist. Sex surrogates spend time building an emotional connection with someone to help them become more comfortable. They talk about fears and take a step-by-step approach to intimacy with the focus very much on supporting the client to overcome any issues and difficulties. Sex therapists and surrogates will be able to support Chris’s emotional needs and help him through what can be a difficult process.

It’s not about making the decision for Chris, but as the saying goes, you don’t know what you don’t know. When someone asks for a sex worker it is really important to have an honest and frank conversation.  It’s worth giving all the information about different options and people who can support with sex and intimacy, allowing them to make an informed decision.

 

You can join our UndressingDisability Hub for more information like this. Our Hub is a platform for the disabled community, where we have professionals sharing their knowledge on all things, sex, relationships, and disability.

 

Masturbation March

By Undressing Disability

Give midwives Christmas off by masturbating this March!

Yes you read that right, we want Masturbation March to be about exploring your sexuality, needs and desires.

 

What are the benefits of masturbation?

Masturbation shouldn’t be a taboo, it can actually be really good for you! Here are a few benefits:

  • It is a great stress reliever!
  • It can improve your sleep
  • Helps you understand your body better
  • Masturbation can even relieve menstrual cramps
  • Can improve your sex life with a partner

 

Lube facts

Here are some interesting facts and uses for lube…

  1. It’s great for massage, oral, and sex toys!
  2. It protects the skin from irritation and tearing (especially if you suffer from pelvic pain)
  3. You should use water or oil based lube with silicon toys to prevent them getting damaged
  4. Trying different flavours and textures can be a great way to spice up your masturbation

 

Sex toy reviews

Sex toys are amazing for increasing pleasure during masturbation. We have a whole guide on our UndressingDisability Hub reviewing various sex toys for both penis and vulva owners.

We discuss the accessibility of the sex toys, the pros and cons, and the occupational therapist view so that you know what you’re getting before purchase.

 

Love Lounge

Our Love Lounge is a safe place for you to ask your burning questions on anything dating, relationships, sex, or even flirting.

We will have one of our experts write back to you with practical advice and support.

 

Resources

Pelvic pain can be caused by conditions such as endometriosis. This resource gives helpful insights on ow to manage pain caused by endometriosis, including intimacy advice.

 

‘Wait, what? Pelvic massages exist!’

In this resource, Jo Silby who is a massage therapist explains what sensual massages are and how they can help with pelvic pain. She also gives some tips for performing one yourself at home.

Where to access:

UndressingDisability Hub under the ‘therapy and counselling’ resources section.

Podcast:

For those who prefer to listen, we also had Jo on our podcast!

 

 

For more information on how to manage this pain and improve your sex life, visit here.

Sally wearing a black dress smiling to the camera

Sallie’s experience living with a rare disease

By Disability

“I was born with a disability called Holt-Oram Syndrome.  It affects the bones and muscles in my entire upper body and causes Congenital Heart Disease. Don’t worry if you haven’t heard of it, no-one has – even doctors.  It’s really rare.”

This is the explanation that has unintentionally defined my life since I was diagnosed with a rare genetic disorder at the age of seven. A rehearsed statement that has to be delivered repeatedly in the hope of gaining acknowledgement, understanding and assistance.  A disease is deemed ‘rare’ if it affects fewer than 1 in 2,000 people. Holt-Oram Syndrome affects 1 in 100,000. Worldwide, there are millions of individuals with equally rare and unusual conditions.

 

Diagnosis

Pre-diagnosis, we didn’t have a name for it. I just had a sore Little Hand, an achy Big Hand, bony shoulders and a huge scar down my chest.  Getting diagnosed wasn’t at the forefront of the doctors’ minds. They casually asked when I was a child if we’d like to know the name of this weirdo genetic fault.  My mum and dad were eager – naturally, and it was eventually christened ‘Holt-Oram Syndrome’.  Mum remembers feeling relieved – we had a name! But in terms of my care – nothing changed significantly due to the lack of research regarding Holt-Oram.  We weren’t given much information by the medical professionals, either before or after my diagnosis. As far as the consultants were concerned, as soon as my heart was ‘fixed’ (spoiler alert: it didn’t stay fixed for long) it wouldn’t cause any further problems. They assumed my skeletal abnormalities shouldn’t affect me too much (despite experiencing chronic pain in my upper body since childhood).  How far from the truth that doctor’s blasé statements proved to be!

In fairness, the doctors didn’t know.  Holt-Oram is so rare, they couldn’t Google it in the nineties.  Holt-Oram isn’t the only misunderstood and under-researched condition, there are roughly 6000 other rare diseases, affecting an estimated 300 million people worldwide.

Sally wearing a black dress smiling to the cameraIn the past, if a doctor hasn’t heard of Holt-Oram they have generally blamed me by insisting that the symptoms I’m describing are psychological.  Due to such little knowledge, a lot of the paediatric doctors I met refused to accept that their awareness was limited.  This caused a huge neglect in my care, and worsened my symptoms as they remained untreated.  As I’ve got older, awareness has improved and I finally have a great team of specialists – but it’s taken years of fighting to get this far.

Daily life

When someone asks me what’s wrong, or a more specific question: “why don’t you have any thumbs?”, “what are those scars?”, “why do you need an adapted car?” I feel sheer panic at having to explain Holt-Oram and how it affects me.  Most people actually lose interest precisely 0.9 seconds after asking.  I feel as if I’m on a very bizarre quiz show with a buzzer about to go off as I’m quickly stumbling over my words in order to provide you with the knowledge you require.

Trying to explain a rare condition to someone is a stressful challenge, but it’s even more difficult when requiring assistance. If I’m struggling to pack shopping into a bag, I’ll hear myself saying “I’m sorry, I’ve got really useless hands”.  If I desperately need a seat on the train I’ll be trying to explain and apologise, “my spine is really wonky and painful” because it’s easier than giving a full medical description. I find myself apologising a lot, even though it isn’t my fault that I have a rare condition. If people haven’t heard of the condition they’re less likely to take me seriously. It’s hard enough explaining it to medical professionals, let alone the general public.

There are countless other medical conditions that are well known, such as Arthritis or Cerebral Palsy. Those with widely understood and researched conditions don’t experience the same barriers as people with rare diseases.  Even if people don’t exactly know about these conditions they’re aware that they legitimately exist. When I require assistance, I often find it much easier to say “I have heart disease” as this is an illness that everyone is aware of and many are affected by. Something well-known is instantly acknowledged, and I never feel the same need to apologise when explaining a condition like this.

Rare disease day

On 28th February 2022 it is Rare Disease Day.  This is an annual opportunity to raise awareness of overlooked and under-researched rare conditions. With the hope of improving medical representation and access to treatment. Research and awareness for rare diseases and their charities is crucial.  These charities find it more difficult to raise funds due to reduced awareness. Therefore, this causes a lack of medical research.

It is incredibly overwhelming to be aware of every single condition that exists – there’s thousands that I’ve never heard of.  But, you don’t need to be a medical genius to acknowledge that there are millions of people worldwide living with rare diseases. These quirky and unique conditions, and the individuals they affect, deserve recognition!

 

Endometriosis

By Undressing Disability

Endometriosis is a disorder where the tissue that grows inside the uterus, also grows on the outside. This tissue behaves like endometrial tissue would and breaks down during each menstrual cycle. However, it has no way to exit the body which has painful effects including irritation, spasming, painful periods, and excessive bleeding.

 

Endometriosis and sex Woman holding a fruit in front of her vagina, she is wearing blue underwear.

Pelvic pain disorders such as endometriosis can have a huge impact on a person’s sex life.

Often people will find themselves choosing between avoiding sex and losing intimacy with a partner. Or having sex resulting in a lot of pain.

On top of this, medication taken for endometriosis can lead to a lack in sexual desire and fatigue. This results in the feeling of guilt due to someone being unable to fulfil their partners sexual needs.

 

Tips

We have collated some of our top tips you can implement with both your partner and on your own.

1)First of all, you should never feel like you need to have sex if it is painful. Feelings of guilt are normal but don’t allow it to pressure you into something you are not ready for.

2) Schedule sex. A common myth is that sex must be spontaneous for it to be sexy, but this isn’t the case. Planning sex allows you to consider your pain relief and prepare making it more enjoyable.

3) Intimacy doesn’t need to be sex. It can be hugging, kissing, spending alone time with your partner. For example, what is your partners love language? This is a great way to show your partner some love without being physically intimate.

4)Being open with your partner about how your pelvic pain affects you can bring you both closer together and help them understand your needs. Communication is key to a healthy relationship so get talking!

5)For some, acupuncture can help with vulva pain.

6)Pelvic massages can be a great way to relieve pelvic pain (which we have a great resource on!)

 

Resources

‘Wait, what? Pelvic massages exist!’Vinyl disk graphics with the text 'Epsidoe 7, Sensual massage w/ Jo Silby' ' Undressing Disability Podcast'

In this resource, Jo who is a massage therapist explains what sensual massages are and how they can help with pelvic pain. She also gives some tips for performing one yourself at home.

Where to access:

UndressingDisability Hub under the ‘therapy and counselling’ resources section.

Podcast: For those who prefer to listen, we also had Jo on our podcast!

 

Sex, Chronic Pain, and Fatigue

This resource explores the difficulties of dealing with chronic pain and fatigue whilst having a sexual relationship. Including our top tips for maintaining a healthy sex life.

Where to access:

UndressingDisability Hub under the ‘sex and intimacy tips’ resources section.

 

Top Tips for Self Treatment of Lichens Sclerosus, Vulvodynia and Endometriosis

Alex from ANA therapies, is a Women’s Health Physiotherapist also specialising in Visceral therapy.  She has put together a ‘Self Help’ guide for people struggling with pelvic pain.

Where to access:

UndressingDisability Hub under the tips for health professionals section

Socials

Make sure to follow our socials where we will be collaborating with other people who have experience with vulva pain, experts in the field, and providing further support.

Instagram

Twitter  

 

Mel and Steve smiling to the camera

Isolation and Loneliness

By Undressing Disability

Isolation is something that can affect anyone at anytime. As part of Enhance the UK’s Loneliness campaign Mel and Steve from Spokz People share how Isolation during the pandemic affected them.  They also introduce the wellbeing programme they have developed.

 

Addressing Isolation and Covid-19 

For many of us, Covid-19 has added to our isolation and loneliness. It has created challenges around finding and keeping PA support and struggling to obtain bare necessities, equipment and services.

Some of us hoped that the experience of lockdown would help others empathise with us more, but this hasn’t been the case. With so many returning to ‘normal’ many of us feel despondent and resigned. Not wanting to get out there and find new relationships. Covid-19 has been traumatic for many of us. Hunkering down at home is usually the safest place to be. But it comes at a cost.

Isolation is a killer. It increases the risk of death by 29%. It carries the same risk of death as obesity or smoking 15 cigarettes a day.

That’s quite some statement. Isolation is something we need to take seriously, especially if it is long term.

Mel and Steve, who run Spokz and Spokz People, have experienced isolation since they have been virtually shielding since March 2020.

“We went without our PA for many months because our PA was unable to maintain distance from those in their circle. We are experiencing burnout and fatigue from juggling 2 businesses. With sporadic PA support, home schooling and the added time and work involved in reducing the risk of Covid-19 entering our home.

In March 2021, we decided we had to take more risks when it became apparent the lack of socialising was affecting our young daughter. Now we meet people outside, but this is challenging in winter.”

 

Wellbeing programme

To support disabled people and their families in isolation, they launched a new online wellbeing community. This programme focusses entirely on reducing isolation and improving wellbeing when living with disability.

The community consists of a forum, chat room, regular live events and Q&As, and videos from disabled people. Including The Last Leg presenter Alex Brooker, disability advocate and Gogglebox star Simon Minty, and disabled influencer and Co-founder of Disability Horizons Martyn Sibley.

Mel is a qualified disability therapist and Steve a mentor. Together they developed a wellbeing programme which provides interactive resources and reflective exercises. Enabling people to work with a peer to improve their mental health and wellbeing. It includes information and tool kits on how to improve self-esteem, build resilience, and manage the many challenging situations being disabled brings.

The new platform aims to remove the many barriers to counselling and mental health services for disabled people. Including access to buildings and resources, the cost of support and the lack of therapist who understand disability.

As many Enhance the UK members know, having a partner who is shielding with you, or who ‘gets’ your concerns about Covid-19, creates a much-needed wellbeing buffer. If you are single, or if your partner just doesn’t ‘get it’, this new platform could be a great source of support for you.

We are continuously adding new content with information and resources on the topic ‘Loving Me’ and ‘Loving others’. Offering additional relationship support alongside Enhance the UK’s. Meeting other people who live with disability in our community is a great way to connect with likeminded people. Including those interested in improving their communication and ability to not be silenced. Finding people we can be ourselves with is vital in maintaining our self-esteem and wellbeing.

Having people around you who don’t fully understand disability can leave us feeling unheard and lonely. Emotions get bottled up and stuck, damaging us physically and mentally in the long-term. This is the cost of isolation that both Spokz People and Enhance are hoping to help address.

 

Get in touch

Visit www.spokzpeople.org.uk/register/ to find out more. We are friendly bunch, feel free to contact us with any questions you have before signing up.

There is an early bird launch price of £150 a year for the first 50 members (use coupon code spokzcommunity25off) and you can pay in 3 instalments. We also just got lottery funding so we now offer a sliding scale of reduced fees for those on incomes under £20,000. We look forward to connecting with you.

 

Spokz People Transforming disability

A graphic of a group of people gathered with music playing, in the forefront a figure stands alone, waving hello

Lonely In A Crowded Room #DisabilityAndLoneliness

By Undressing Disability

Our latest awareness campaign highlights that loneliness is a major issue for many disabled people.

What may not be obvious to everyone is that even in a room of friends and family, people can still feel isolated and alone.

Jennie Williams, CEO of Enhance The UK writes about everyday situations that can be isolating when you are Deaf or have a hearing impairment.

Jennie has long caramel coloured hair, brown eyes and wears red lipstick

When you’re Deaf or have a hearing impairment like me, there are some situations that can feel daunting and a bit stressful. Family gatherings and social get togethers being a prime example.

You see, in a noisy restaurant with background music, or even at home with lots of people talking at once, it can be really difficult to engage in conversation.

Picture the scene. Auntie Mary is sitting to my left reminiscing about when she met Uncle Freddie. My cousin John is chatting across the table to my sister about his new job. My daughter is tugging at my sleeve with a question and the dog is barking in the background. As a hearing person you might find this experience loud and distracting. Imagine how that feels when you’re trying to tune in to one voice at a time.

The thing that most people don’t grasp is that when a D/deaf person puts on their hearing aid or cochlear implant it’s not like wearing a pair of glasses. There isn’t sudden clarity. My hearing aids pick up ALL of the sounds around me whether I want them to or not. It takes time for my brain to adapt and work out sounds and that can be very tiring. Add into this reality the challenge of trying to lipread someone with a big bushy beard, or poor lighting and it’s completely exhausting.

What’s important to remember is that Communication is a 50-50 thing. We’ve all got a part to play. It shouldn’t just be the deaf person, always trying to ‘hear’ everything that’s being said. The statistics show that 1 in 6 people in the UK have a hearing impairment so it’s highly likely someone you know can relate to feeling excluded from the conversation. This barrier can lead to a disconnect and that’s where loneliness kicks in.

So what can people do to make social gatherings more accessible?

Well if you’re a hearing person you could start by asking what a D/deaf person’s access needs are. What would make the environment more comfortable and accessible? Examples are:

  1. Turning down background music
  2. Asking the restaurant for a quiet table
  3. Asking where the best place for you to sit is, so they can lip read you

If you’re the one with the hearing impairment then you could consider educating people by being open about what your own access needs are. Hearing loss is nothing to be ashamed or embarrassed about. It happens to the best of us, myself included, and I’ve found being honest about it helpful.

If a hearing person suggests you should wear a hearing aid because it would make life easier for THEM to be able to communicate with you, that’s not the reason you should wear one. It’s a decision only you can make if and when you’re ready to.

Stay Connected

Follow our disability and loneliness campaign by searching the hashtag #DisabilityAndLoneliness. Join us on twitter @ETUKUndressing and on Instagram @UndressingDisability.

A graphic of a pink and white chalked hand reaching out to each other

Combatting Loneliness – Helpful Links

By Undressing Disability

If you’re following our Disability and Loneliness campaign, you’ll have seen our survey results which highlighted that:

  • 47% of those surveyed said they felt lonely frequently
  • 12% stated they always experienced loneliness
  • Only 20% had spoken with their GP, caregiver or therapist in relation to the impact loneliness was having on their wellbeing
  •  48% turning to friends and family for support.
  •  9.7% feel they had no-one to help and 41% replied ‘Maybe’ when asked if they had a support network to turn to
  • 38% believed that disabled people are the group that loneliness impacts the most
  • 32% believing that it was the over 50’s demographic most likely to feel lonely

Throughout our campaign we will add useful links and resources to this page. In the meantime follow the hashtag #DisabilityAndLoneliness and visit the links below.

The Love Lounge

If you’re feeling lonely following a relationship breakdown or would like to start dating but are worried about rejection or disclosing your disability read the articles below. You can also write into our Love Lounge for advice from our resident sexperts.

Disability, Sex, Virginity and Safety 

Finding the Confidence to Date Again

Dating and Living with Friedreich’s Ataxia 

Why do attraction sparks never go anywhere for me?

How to Become a More Confident Dater

Rejection, Dating and Disclosing Disability

Professional Support and Helplines

You might also find it helpful to visit the following websites or to call their helpline if you need someone to talk to. Please don’t struggle alone, there is help available and it’s always good to talk.

CALM – Campaign Against Living Miserably

MIND – The Mental Health Charity 

SAMARITANS 

WAVELENGTH – Fighting Loneliness

MARMALADE TRUST – Loneliness Charity 

UNDRESSING DISABILITY HUB – our free hub is a network for anyone interested in, or working in the field of sex and disability. Searching through the members there will highlight counsellors and therapists should you want to find professional help.

Stay Connected

Follow #DisabilityAndLoneliness hashtag and join the discussion around our campaign on twitter @ETUKUndressing and on Instagram @UndressingDisability.

Charlotte Faragher smiles for the camera. She has long dark hair, a white top with blue stripes

Loneliness – A Semi-Paranoid Perspective

By Disability, Undressing Disability

This guest article is written by Charlotte Faragher, a disability rights writer from Oldham. Charlotte, who has had quadriplegic cerebral palsy since birth, has published many articles about disabled dating and intimate relationships.

Loneliness is something that will affect us all at some point in our lives. It is sadly true that irrespective of personal circumstance many of us will have had to tackle this issue with unflinching realism, thanks to Covid 19 and everything that has brought. Yet, I believe there are a particular set of negative voices and presumptions to battle daily if you are a disabled young person in today’s society, as I am.

Charlotte wears a red top, has long dark brown hair and a big smile

One of these facets is having to accept what my future may look like, especially as my parents are currently my main care givers. In the years ahead, without a partner or close friend to take over that role, it is most likely I would have to be placed under the permanent care of the local authority. This personally fills me with deep shame, and I have no doubt it would have a severe negative impact on my physical and mental state, thus exacerbating my feelings of loneliness.

I think in this way because it gives the impression that my disability and all its complex components are just too multifaceted and tiring for someone to handle permanently. Additionally, if I were placed in a care home or supported living at a relatively young age, I would have extra time to stew over the lack of significant life experiences I’ve had. Life experiences that would be hampered further by the reduced freedom to do as I please, when I want.

Although I understand that I can greatly reduce the stress felt by my loved ones by being a positive, thankful light in their lives, it does not mean that the enormity of caring for me will magically reduce as a result.

Romantic Relationships

Furthermore, if I were in a romantic relationship there would inevitably be times when a partner would want to lean on me for support. I worry I would not be able to help them through as effectively as I would like. This could lead to us both feeling more isolated and lonelier.

Friendships

When it comes to friendships, I often struggle to make friends or feel genuinely comfortable in a friendship group for two reasons.

1. I worry that the people I want to befriend won’t fully understand or respect the reality of my disability. I am almost fully competent, educationally and emotionally, yet struggle to do many physical activities that others may take for granted. I also think that people will see me as less intelligent and socially aware simply because of my differences.

2. I feel that when going out with friends, they have to put up with extra inconveniences such as things taking longer due to my care needs, or choice of venues being limited due to poor access.

Paranoid Thinking?

I often wonder if my friends enjoy the experiences less, simply because I am there. Are their assurances that they are unbothered by these changes to their normal night out genuine? Is it better to be lonely than experience friendship induced paranoia?

To summarise, I am aware that one way to reduce my paranoia and feelings of loneliness is to try to remember that I am an awesome, valuable person who has just as much right to a rich and beautiful life as anyone else.

Indeed, friendships are a key element to humans not just surviving but thriving. I also could get out and socialize more and stop assuming that everyone has negative and apprehensive feelings towards me and my disability. It could, in fact, enhance our relationships.

If people were more open and outwardly accepting of others with differences, it would allow me to feel more loved and valued in the body I have, just as I am. So let’s work together!

Follow Our Loneliness Campaign

This article by Charlotte Faragher is part of Enhance The UK’s disability and loneliness camaign. For tips on overcoming loneliness and for more insightful articles search the hashtag #DisabilityAndLoneliness and follow our campaign. We’re @ETUKUndressing on twitter and on Instagram @UndressingDisability.

More from Charlotte

If you enjoyed this article by Charlotte you can read more from her in this article about romantic relationships. You can also connect with her on Facebook and Twitter.

a black and white image with half a face peeking through a black curtain

Disability And Loneliness – Survey & Campaign By Enhance The UK

By Undressing Disability

It’s time to talk openly about loneliness and disability and the impact it has on an individual’s emotional, mental, and physical wellbeing.

 

In the last 20 months our charity, Enhance The UK has seen a significant spike in the volume of emails we receive from disabled people about how lonely and cut off from society they feel. Concerned by this worrying trend we knew it was time for action and our loneliness campaign aims to share insight, information, and potential solutions for disabled people who feel isolated and alone.

 Survey and Statistics

We invited disabled people living in the UK to complete a survey asking about their personal experience of loneliness. The results highlighted that of those surveyed

  •   47% said they felt lonely frequently and 12% stated they always experienced loneliness
  •   20% had spoken with their GP, caregiver or therapist in relation to the impact loneliness was having on their wellbeing, with 48% turning to friends and family for support.
  •   9.7% feel they had no-one to help and 41% replied ‘Maybe’ when asked if they had a support network to turn to
  •   38% believe that disabled people are the group that loneliness impacts the most, followed by 32% thinking it was the over 50’s demographic most likely to feel lonely.

When asked what could be done to help disabled people feel less alone the results showed that:

  •   45% believed that the need for personal contact, a hug or intimacy would be hugely beneficial
  •   38% recommended 1 to 1 time with a friend
  •   6% opted for attending organised group events with comments being the importance of a connection to the disabled community playing a positive role in feeling less isolated.

Campaign Aims

Our campaign aims to:

  •       Highlight what the different types of loneliness are
  •   Dispel myths about whom loneliness affects
  •   Have open and frank conversations about how loneliness can affect disabled people
  •   Offer valuable insight and potential solutions to help individuals feel more connected and less alone
  •       Signpost people to organisations who can help

Valuable Insight and Information

Over the coming weeks we’ll be sharing information to help disabled people (and their family and carers) find potential solutions to loneliness. Our team members, who all have a disability themselves, have researched and created the following insights:

  1.     Top Tips – what you can do to feel less isolated and more connected
  2.     Personal Stories – what it’s like to date when you have a carer
  3.     Where to find support – we’ll be signposting you to specialist organisations
  4.     Loneliness and Paranoia – A guest post by Charlotte Faragher
  5.     Undressing Disability Podcast –  Kelly Gordon and Jennie Williams discuss loneliness and dating
  6.     A resource about how to spot loneliness and tips for helping

 

Follow the Campaign

Follow our campaign by searching the hashtag #DisabilityAndLoneliness and join the conversation by connecting with us on Twitter @ETUKUndressing and on Instagram @UndressingDisability

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