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Jul 14
the hashtag Disability Pride Month written in white on a pink background

Disability Pride Month 2021

By Sex & disability, Undressing Disability

A guest blog post by Damian, from the Undressing Disability Team. Damian shares his personal experience of learning to accept and love himself as a disabled person and why he now celebrates Disability Pride Month.

Damian wears a pink tshirt and leans against a brick wall. He is white with short brown hair and dark rimmed glasses and a light beard

When I was diagnosed with Ehlers Danlos Syndrome (EDS) at 14 years old, I found it hard to come to terms with. I wondered what it would mean for my life. It took me a very long time to “own” my disability and not be afraid or ashamed to show it.

I think it was hard when I was first diagnosed as I had to give up a lot of the things that I enjoyed doing, like running and playing football. There was nothing in the way of support or guidance back then.  Looking back now, I think I was affected more than I realise by the fact that I did not get to finish my last year at school. The school decided it wasn’t safe for me to be on the premises after I slipped down a couple of stairs on my crutches. They had no interest in making things more accessible for me so I had to leave and was only allowed to sit a few of my exams. To be honest it was hard getting people to accept that I had a disability. Back then, hardly anyone had heard of Ehlers Danlos Syndrome so the fact I had to leave school and was seeing my friends less made it really hard. I missed out on a lot of the experiences teenagers usually get to enjoy.

“I tried to hide my disability”

Some people thought I was making my condition up as there was nothing to see. That’s possibly one of the main reasons I began to hide my disability as much as I could. I would only tell a small amount of people and that was usually if I absolutely needed to.

I wear support braces on most of my joints and always used to wear clothes that covered them up. If people could see my wrist brace, for example, I would just say that I’d sprained my wrist instead of explaining about my condition.  I would only ever wear shorts on holiday as I did not like people seeing my knee braces. But I was still worried about what strangers would think about seeing me like that.

It took nearly 20 years for me to be more confident about myself and my disability.

Now I am very much of the thinking that if I have to wear braces and supports, I want people to see them.  I quite often wear ones that stand out so it’s not unusual to see me wearing pink wrist supports. It makes me more confident about my disability and I guess it helps others to be more aware of me. Hopefully they can give me more space and not bump into me.

My brightly coloured accessories become quite a conversation starter at times and I am now happy to talk about my disability. It is something I will not hide ever again. It plays a big part in who I am. I wanted to write about this for Disability Pride Month as I know that whilst some people are posting on social media about all the things they are proud of, others will be lacking the confidence to do that. I hope in sharing this it helps in some way. To see what others are sharing search the hashtags #DisabilityPrideMonth or #DisabilityPride. 

I now speak passionately about being disabled and I’m very proud of who I am.  Part of my role here at Enhance The UK is to answer questions for the Love Lounge and by helping to run the Undressing Disability campaign. Joining the team at Enhance the UK has given me both confidence and a platform to talk about my disability and experiences in the hope of helping others realise they do not have to hide their disabilities.

Throughout the month of July we’re sharing posts on our Instagram Stories that relate to #DisabilityPrideMonth with the aim of bringing together the disabled community so we can celebrate, and learn from each other’s experiences. Follow us @UndressingDisability.

 

Stay Connected

Keep up to date with all our latest news, insights and resources by joining us on twitter @ETUKUndressing and Instagram @UndressingDisability.

The Love Lounge is a free service offering advice on questions relating to disability, sex, dating and relationships. Get in touch.

Jun 16
condoms against a blue background

I hate condoms

By The Love Lounge

The Question

Dear Love Lounge,

I’m 23 and in a new relationship. I had cancer aged 12 and lost my right leg from the knee down. I’m comfortable in my own skin and after a few pints I’m confident enough to chat up girls and get laid. I’ve been dating someone I really like but she insists on using condoms, and I really hate condoms. I still have check-ups, but the specialist is God fearing and ages with my Grandad, so asking questions about sex feels weird. I reckon with all the chemo I had my tadpoles will not be champion swimmers. How can I find that out so we can ditch the condoms?

Cheers,

Joe.

Our Answer

Hi, thanks so much for writing in!

Honestly? You’re probably not going to like my response but, until your relationship is more established, I think your partner has a very good point. Condoms don’t just prevent pregnancy, they prevent STI’s too. As well as having sex, a new relationship is about gaining trust. And regardless of how many check-ups you have, your girlfriend probably just wants to keep herself safe – and good for her!

What do you hate condoms? If it’s the fit or feel, there are loads of different sizes and textures on the market. Try and be playful about it, seeing which ones feel the best for both of you. Find out where you can get free condoms via this NHS link. 

three condoms in blue, red and silver wrappers

Then, we’d suggest attending your next check up with your girlfriend. Ask to see a different specialist if possible to talk about the impact chemotherapy may or may not have had on your fertility. Or just drop in at your local sexual health clinic, where you can both chat about your worries, concerns, and explore all types of contraception. Only condoms protect against STIs though, so that part really is a trust thing! Build on that, and the rest might just follow. If you sign up to our Undressing Disability Hub for free, you can access our free resource on all types of contraception.

Love Lounge Team x

Learn More & Join Our Hub

We get lots of questions to our Love Lounge. We answer each individual one privately, then make them anonymous and publish here to help more people. Use the search box on our website to look for a specific topic e.g. disclosing disability, or accessible sex positions. If we can help you, then email us. 

Join us on twitter @ETUKUndressing or Instagram @UndressingDisability. You can also join our Undressing Disability Hub for free.

 

Next question
Mar 10
Different Sexual Tests - a bed with handcuffs and a vanilla ice-cream

Different Sexual Needs

By The Love Lounge

The Question

Dear Love Lounge,

My partner and I have different sexual needs. We are both disabled and before getting together had limited sexual experiences. We’ve been together for almost a year and are very open with each other and comfortable in our own skins. It’s fair to say we really love each other and want this relationship to last. The problem is that there’s one thing in particular that really excites her, and it is a complete turn off for me. I have attempted to go along with it, but she knows I’m not into it and it ruins the moment and causes an argument.

It’s becoming an issue and our sex life is suffering. How do we get over this?

Thanks,

Billy

(Billy’s name has been changed and he recieved a private response prior to this Q&A being published.)

Our Answer

 

Hi Billy,

It sounds like you have a strong, happy relationship despite your different sexual needs. I’m encouraged that you’re very open and comfortable with each other. This will hopefully set you in good stead for resolving this issue.

Sexual compatibility is about the shared feelings that you and your partner have about your needs, desires, wants and beliefs around sex.

What To Do When You Have Different Sexual Needs

Ultimately, you and your partner will have to discuss how far each of you are willing to compromise. This will involve very honest, open, frank discussions. And lots of trial and error. It is vital that each of you always feel respected and gives consent.
If you can work together towards a shared goal, this will help. Set some targets, keep giving feedback about how you’re feeling. It needs to be something that you both are keen to achieve, not something that will make you feel under more pressure. Currently it sounds like you’ve tried to fulfil her need but she isn’t enjoying the fact that you’re not enjoying it. That’s a good indicator that you want your love-making to be enjoyable for both of you and your partner isn’t being selfish about her needs.

The Dangers of Forcing The Issue

With different sexual needs, sometimes one person might think that if the couple tries a particular act many times, the other person will get used to it and enjoy it. This isn’t always the case. Doing this can cause trauma and irreversible damage.

So, the compromise, or solution, that you find together will be whatever you BOTH find acceptable, and perhaps fulfilling for both too. No one should be forced to do something they don’t want to and equally if someone is constantly sacrificing what they’d really want to do, it will build up huge resentment.

What If We Can’t Resolve It?

The key is to recognise that both of your feelings count. When in a relationship with another, your partner’s feelings are just as important as yours. By working within this frame, you will have mutual respect and are more likely to share your honest feelings with each other knowing they will be safe and valued. If your opinion of something differs, that’s ok, but to dismiss the other person’s opinion or feelings as not mattering, then begins a problem which will just push you further apart.

Ignoring the disparity between two people’s sexual tastes will never work. The problem will become bigger and impact on other areas of the relationship. If you are unable to find a mutual compromise, then therapy will help to repair resentments. It will offer a safe space for you both to share your feelings and concerns, without shame, accusation, or guilt. The therapist will facilitate each partner to be heard and will notice patterns and hidden meaning in what you’re both saying. (Learn more about what sexual therapy involves in this episode of Undressing Disability Podcast.)

How sexually different are you?

If it seems impossible to find compromise or your tastes are far too different, it may be time to call an end to a relationship. If you are both unable to satisfy each other, is it fair to stay in a relationship full of resentment, frustration, and angst?

If your different sexual needs were a matter of frequency, and you’re near the desired target of your partner, then compromise would probably be easy to achieve. However, if your partner is into kink and you’re into vanilla and neither are wanting to compromise by doing a bit of both, then it will be much harder to make it work.

Both could set each other free to find a partner whose sexual tastes are more compatible. And therefore, you may be more fulfilled in a different relationship that matches your needs. This wouldn’t be an easy choice and would be the last resort, but sometimes the gap is just too vast.

With your desire to stay together and your openness and love you have for each other; I feel you will manage to have the important talks. Respect for each other will be key here.

I wish you the best of luck in finding a compromise!

Zoe

 

Got a question our Love Lounge team can help with? Get in touch.

Keep up to date with all our latest Love Lounge questions, podcasts, blogs and campaigns by joining us on Instagram and twitter. #UndressingDisability.

 

Next question
Mar 10
My partner hates my vibrator - red and black lacy knickers with a black vibrator positioned on the top

Partner Hates My Vibrator

By The Love Lounge

The Question

Hi Love Lounge,

My partner hates my vibrator and well, I love it and don’t wanna to give it up. I also don’t wanna give up my boyfriend as he’s kind and funny and genuinely a good guy. I have limited mobility in my fingers and have always used vibrators, they hit the spot every time.

I’d never really mentioned it to my boyfriend, but he found one in the bedside drawer and was very annoyed about it. He says I shouldn’t need it now that I’ve got him and stropped off in the huff.  He’s usually pretty laid back, so I laughed thinking he was joking but no, deadly serious.

He isn’t a talker and I’m struggling to understand the issue here or how to approach it with him. Can you help me out?

Thanks, Lisa

(Names have been changed for anonymity and we send a private answer prior to publishing here on the blog.)

Our Answer

Hi Lisa,

Thank you for getting in touch with us. First up, you are definitely not alone! ‘My partner hates my vibrator’ are words we hear regularly at the Love Lounge.

The main reason for this is that a partner can feel inadequate or jealous if you are able to orgasm with a toy easier than you can with them. They might think that you prefer the toy to them. The size of vibrator you use could also make them feel self-conscious about how they physically compare.

The first thing I would suggest is to try and talk to your partner about it. Explain why you like using a vibrator but reassure him that it is not a replacement for him. Explain that you use a vibrator because of your mobility issues and that it makes masturbation easier and more pleasurable.

The next step then could be to introduce sex toys when you are having sex. For example using your vibrator whilst your partner watches. The other option is to invite your partner to use it on you which may help him feel more involved and less threatened by it.

Couples Toys

You could also try a couples’ toy. Here are a few examples of products that you could use together.

The Hot Octopuss Atom Cock Ring is very powerful cock ring and enhances pleasure for both partners.

The Satisfyer Double Joy is a great product that can be used whilst having sex. It can also be used for Solo Play with your partner controlling it using a Smart Phone App.

You could also buy him his own Sex Toy that he can either use on his own or you could use on him.

A good product to start with would be the Tenga Egg Masturbator. The super stretch material gives the user a different sensation when masturbating. There is a wide range of different textures available but this one has little hearts embossed on it.

Another product is the Fleshlight Stamina Unit which is a great Sex Toy for someone with a penis.

Stay Connected.

If you have a dating dilemma or question that relates to sex and disability get in touch. Follow us on twitter @ETUKUndressing and on Instagram @UndressingDisability. You can also join our Undressing Disability Hub for free. It’s a friendly network of experts, researchers and people who have an interest in learning more about sex and disability. There’s free resources to download too.

 

Next question
Feb 24
Image of a man wearing jeans undoing his zip

Disability and Male Masturbation Toys

By The Love Lounge

The Question

Hello.

Do you have any suggestions to help with my disability and male masturbation? My girlfriend is awesome but has a much lower sex drive than me. I’ve always LOVED to masturbate but have no use of my hands due to searing pain, therefore, I cant touch myself. It is driving me mad honestly! And I’ve been unable to ejaculate either since a SCI (Spinal Chord Injury) nearly 3 years ago. I have female carers 24/7. Any tips please?

Thanks
John.

Our Answer

Thanks for contacting us John. I have given your question about disability and male masturbation toys a bit of thought. There are few different male masturbation products that will hopefully give you a pleasurable experience and help you to reach orgasm on your own.

The products I have listed below do not need a lot of hand dexterity. Here is some information about them and links to where you can purchase.

Male Masturbation Products

  • The Quest range of products has been developed by Enhance the UK and leading sex toy manufacturer Rocks Off. It features two masturbators for people with a penis. Elevate is a stretchy cock ring which can be used over the shaft or fingers while accommodating all body types to maximise sensations.

 

  • Quest also features the Discover wands which can be used in multiple different ways including as a penis stroker thanks to one of the detachable heads.
  • A boxed "Elevate" sex toy from the quest range. The box is orange, purple and blue, and the sex toy is displayed on the front.The Hot Octopuss Pulse range of products were designed for people with SCIs’ in mind to help them reach orgasm and ejaculate. The Design of the Pulse toys even work if you do not have an erection. They require no use of hands once the toy is in place and turned on. Some of the Pulse models come with remote controls which make it even easier to use.

 

  • Another option is the Suck O-Mat 2 Sucking machine. Once the penis is in the sleeve it gives hands free pleasure. It can be controlled by remote control so can also be controlled by your partner as well. It is mains powered which means it is powerful, producing up to 200 suction impulses a minute.

 

  • The Handy is marketed as the ultimate Hand Job machine which is another powerful mains powered Masturbator. The Handy comes with a dotted sleeve but can also be attached to other sleeves. It can also be controlled over the internet and also synchronised to some of the videos on the website. The handy is also compatible with a VR Headset.

Disability and male masturbation - the Handy

  • There are also products like the Ferticare 2.0 which is a powerful medical vibrator which has been designed to help men with spinal cord injury to achieve ejaculation.

 

I know a lot of men who have Spinal Cord injuries cannot ejaculate and even using these products may not change that. I would also recommend talking to your doctor before using the more powerful toys to rule out the possibilities of any complications with your SCI i.e. Autonomic Dysreflexia.

I hope this advice helps and if you have any other questions please feel free to get back in touch.

Kind regards

Damian

 

Send Your Questions To The Love Lounge

The Love Lounge team are here to help so get in touch if you’d like advice or need more information on a topic.

Our panel of sexperts have a range of different disabilities, experiences and knowledge. We’ll do our utmost to find a solution for your dating dilemmas, sex education questions or  relationship worries. Please don’t be shy about asking a question, we genuinely want to help. All questions are answered privately, and then we remove any personal details and publish here on our blog with the goal of helping others who may be searching for similar insights.

Stay Connected

Follow our Undressing Disability campaign on social media. Find us on twitter @ETUKUndressing or on Instagram @UndressingDisability. #UndressingDisability

Next question
Feb 17
Sex when you have a live-in PA A man kisses a womans neck as she lies on a bed, their hands are entwined

Sex when you have a live-in PA

By The Love Lounge

The Question

Hello,

My question is about sex when you have a live-in PA as I worry about the thought of having sex when she’s around. I’ve been a wheelchair user for 8 years and haven’t had a sexual relationship in this time. It has become a big issue for me because I always have a live-in PA.

I worry about how I can have sex – either in a relationship or a one-night stand because I don’t know how the logistics will work. I’m not very sexually open/confident and the thought of my PA knowing I’m having sex in the other room freaks me out.

Also, would they have to get me on the bed in preparation? I just feel it’s going to ruin any sexy moment and what will the guy think of me? I’ll feel unsexy and like a child being helped.

Hoping you can give me some advice or support if you’ve had any experience of this before?

Steph, 30.

Our Answer

Hi Steph,

Thanks so much for writing to us! We often get asked this question about sex when you have a live-in PA.

There are a couple of things here; how close you feel with your live-in PA and if you have different ones? And, about owning your right to have a sex life. At ETUK we believe everyone has the right to have a sex life, no matter their situation!

So firstly, try and work on your confidence to be able to tell your PA what you want or need. Say ‘I want this to happen and I’d love for you to make it easier for me as I’m embarrassed’. They are there to enable these things to happen. You don’t have to worry about what someone else is thinking, it’s not their life. This is yours.

Expressing your Needs

I understand it may feel difficult to be open with them, making yourself emotionally vulnerable. But you can say as much or as little as you want to, whilst keeping yourself safe. I have found that being open and sharing things I’m embarrassed about can feel like the most scary thing. However, once you’ve let it out of your mouth and someone reacts kindly to it, it’s the most liberating thing ever! And you will then be confident to share more!

The Logistics

This is where the relationship with your PA will play a part. If they change and you have a favourite, start discussing it with that one and plan for the ‘event’ to happen when they’re staying with you. When you’ve done it once with one PA, then I’m sure it will be easier to do it again when another is with you. This means you won’t have to restrict sexy time to a particular week!!! Your live-in PA can always go out for a couple of hours so you have sex in complete privacy. But if that’s not safe for you, tell them turn their TV up! 😉

As for help in the bedroom, I don’t know your mobility needs but perhaps the guy you have sex with will be happy to help you. It can become sexy in itself… moving you on to the bed, kissing you in between stages…keeping the excitement going. Blokes like something different! And then he can undress you if you need help. This can be as slow or fast as you want – it can all be very tantalising.

Have confidence that if he wants to have sex with you, he won’t be worrying about the logistics of getting there! Don’t apologise for it, and JUST HAVE FUN!!!

Hope this helps.
Zoe x

 

Next question
Oct 08
Losing my virginity when I have Cerebral Palsy - a young man and woman lie on a multi-coloured bed. They are wearing t-shirts and laughing and have their arms around each other

Losing My Virginity When I have Cerebral Palsy

By The Love Lounge

The Question

Hi Ted,
I have cerebral palsy and I’m just about to go on a third date with a girl I really like. I think it has the potential to go somewhere. I’ve never had sex before, and wondered if you had any advice, as someone that also has CP?
Thanks,
A

Our Answer

Hi A,
Congratulations on securing a third date with the potential of going fourth base – not a mean feat indeed. The most succinct advice I can give is not to worry. First times are always messy, cumbersome and leave you wondering if sex is ‘all that’. But trust me, it gets better!

Practical Advice

However, as I have cerebral palsy myself I can offer some practical advice. Here are some little tips to point you in the right direction of how to make things as enjoyable as possible when you lack coordination. Firstly, I don’t know how important it is to you to unhook your first bra, but it may well be and you may well feel this is a task you cannot perform (most men, CP or not, struggle!). In this instance you could always ask her to unbuckle it while you hold it in place and then you get to perform the ‘reveal’ without the fiddly bit.
You could apply this to the other aspects of undressing so you can get the thrill of doing it yourself minus the need for the fine motor skills you may lack.

Manoeuvres

As for the actual act it’s important you don’t feel embarrassed about the things you can’t do. I really struggle crawling on a mattress (I fall into my own indent!!), so if you fancy a trip down south maybe think about other ways of getting there. Getting out of bed and kneeling could offer much more stability.

Taking Control

I would imagine that being your first time and accepting the restrictions of your movements she will ‘do all the work’ no questions asked. However if you build up a relationship with this woman you could have a think about and discuss ways you could take more control. That’s if, and only if you want to. I mentioned in a previous answer trying doggy style with a grabrail to help with stability, this could be a way for you to feel more in control.

Satisfaction

And lastly, a piece of advice not specifically centred around disability. Don’t forget that when the show is over (and this may take no time at all, which is fine!) there are plenty of other ways you can still ensure the satisfaction of both parties! So don’t worry about this at all.
Have fun!!
Best
Ted

Send Us Your Questions

Can our team help with a dating dilemma, sex or relationship question? Get in touch and we’ll do our utmost to find the answers you need. Follow us on Instagram @UndressingDisability and twitter @ETUKUndressing.

 

Next question
Sep 18
The Love Abilities Festival logo against a dark background with the dates 15th - 19th October 2020

The Love Abilities Virtual Sexuality and Disability Festival

By Undressing Disability

Empowerment

We at Enhance the UK are super excited by the upcoming Love Abilities Festival.  The festival aims to change the belief that disabled people have no desire for love, sex, and intimacy. It aims to empower disabled people with the skills, knowledge and resources to lead the fullest lives possible. And for their caregivers, lovers and allies to help support or be part of their life.  This is a festival that’s right up our street!

Love Abilities

The Love Abilities Festival takes place over 5 days starting on the 15th of October.   There will be 29 sessions and 50 presenters spanning 6 countries.  There is something for everyone in the programme from ‘Sex, the Law, Disability Rights and Fun’ to a workshop on ‘The Art of Teasing’.  If you’ve signed up the sessions are available for 30 days after the event.

  Jennie Williams Presenter at Love Abilities Festival

Dating with Disabilities

Jennie & Emily from our team will be on the ‘Dating with Disabilities’ panel alongside Dr Richard Bruno and Michelle Donald.

And our resident Love Lounge sexpert and occupational therapist Katherine Sellors is on the BDSM panel.

Love Abilities Festival panellist Kat Sellors

Tickets

You can get your tickets and find more information on https://loveabilities.org/ We hope to see you then!

Have you joined our Undressing Disability Hub yet? It’s a free online space where anyone with an interest in the topic of sex and disability can share knowledge, information, ideas and experiences. Sign up today.

Find us on twitter and Instagram, search hashtag #UndressingDisability.

Jul 23

Launch of the Undressing Disability Hub

By Undressing Disability

We’ve been working on an exciting new project for quite a while now – our Undressing Disability Hub. The Hub is an online networking platform where anyone can sign up for a free membership and share experiences, ideas, awareness campaigns and educational resources around the topic of sex and disability.

Our Aim

We encourage you to sign up and make new connections. We hope that together we can make progress and positive changes within this field, and show that we all deserve access to sexual expression, sensuality and safe, fun and satisfying relationships.

Knowledge and Ideas

We hope that as a member you’ll use the space to shout loudly about the projects you’re working on, any ideas you have and encourage others to sign up and do the same. We’ll make more of a splash in furthering change when we work together, and the Hub – that we like to call ‘the sexy little sibling of LinkedIn’ – is here to help us all do just that!

Working Together 

What we do at Enhance the UK has collaboration and communication at its heart, as does the reason why our Undressing Disability campaign – and therefore our Hub – was set up in the first place.

Inclusive Sex Education

Over 10 years ago, our CEO, Jennie Williams, was working within the care sector and realised that, not only was sexual expression not being discussed or appearing on any care plans, disabled people weren’t being viewed as capable or deserving of sensuality or intimacy. Be this through masturbation or with a partner. Years later, relationships and sex education is nowhere near as inclusive as many of us would like it to be, and organisations are still caring for others without any policy or procedure relating to relationships and intimacy, as well as safeguarding for their staff on this issue. And, until this changes, there’s plenty of work for us to be getting on with.

In signing up to and using the Undressing Disability Hub, you may want to discuss the inclusivity of sex toys and equipment or get involved in academic studies relating to sex and disability. Or even just share personal and professional experiences that then lead to collaborative projects, exciting new campaigns and, ultimately, change.

Free E-Book to celebrate Hub launch

Oh, and did we mention that when you sign up, you’ll receive a free copy of our Undressing Disability e-book, too?

We are thrilled to have created something that encourages such useful conversation and can’t wait to see this platform – and more importantly, this topic – flourish. It undoubtedly deserves to.

SIGN UP TODAY.

Keep up to date with all our latest news, articles and campaigns by connecting with our Undressing Disability campaign on twitter and Instagram.

 

Jul 23
Kelly is pictured in her electric wheelchair with her son Mason and newborn Hunter. She is wearing a bright red adidas top, and is beaming at the camera

How having a PA changed my experience of parenthood

By Undressing Disability

A guest blog by Kelly Perks-Bevington

I’m Kelly and am a disability awareness trainer for Enhance The UK, and I’ve got two little boys, Mason who is two and a half, and Hunter who is just seven weeks old. When I was invited to write this article about parenthood, I thought about it and there is no better piece that I could write than talking about my experience of parenthood this time using PA’s.

Wait and See

When I was having Mason, I really had no idea what to expect, and largely neither did the doctors. They said it was a “wait and see” situation, which of course is what every expectant mother wants to hear! It really was that! After thinking about a natural birth or a c-section and flip flopping between the two Mason decided himself that he wanted to be born at 38 weeks, and after getting to 10cm dilated and pushing, he decided again that he didn’t want to come out that way which meant that I was to have an emergency c-section under general anaesthetic.

In Control

The whole experience with Hunter from start to finish was completely different, I had control. I decided on a c-section at 37 weeks (to avoid him beating me to it!) and I decided also to try a spinal so that I could be awake for his birth. As I have scoliosis of the spine without rods or surgery it was pretty much a gamble as to whether the spinal would take, how far up it would go or whether it would be too low down. But I was determined to try it. I wanted to see my baby born, and I wanted it on my own terms. It worked after three pretty painful attempts.

It was really eye opening to actually figure out, along with the consultant where my spine actually was, and which nerves reacted to being prodded with a pretty giant needle!

Kelly holds her newborn son Hunter, she is wearing a leopard print top and has dark hair and blue eyes

The Spinal

The spinal was INSANE, it felt like warm pins and needles running through my lower body and the consultant said that despite my spine it was some of his best work – “the perfect spinal”! I felt in control, and when I heard my baby’s first cry I was in bits! Such a special moment.

Living with PA’s and having a baby

From the start of the journey with Hunter I had complete control and that has not changed at all now. I am in full control, thanks to my PA’s. I can get the assistance I need, and I am able to make ALL of my own parenting choices.

Throughout Mason’s early years I was reliant quite a lot on family and they were fab. However, family often make decisions on your behalf, not maliciously or to take over, but just because it is often easier for them to jump in for a feed, or to comfort the baby there and then rather than help with positioning etc.!

Don’t get wrong, I am so grateful for all of my family support with both kids, I couldn’t be without it! But a PA is literally there to assist you, not to do the job for you. Of course, my PA’s love baby cuddles too but it is all on my terms.

Because of my amazing team I’m able to take the time out I need to do everything I need to do. Whether it’s going for a quick wee (something so many moms don’t get to do, especially disabled ones!) or grabbing that much needed bath. It is amazing to be able to work to a schedule with support, rather than just frantically trying to do everything that needs doing.

The Importance of Self Care

With Mason, I ended up in hospital due to my lack of time for basic self-care, and it was serious. I ended up with sepsis and was hospitalized for a week. This time, I have someone who is there for me, making sure I drink enough, making sure I go to the toilet and making sure I am eating properly. I can’t explain how important that is. It would be amazing if all new moms had PA’s, disability or not because honestly the help is invaluable!

A selfie of Kelly and her two year old son Mason who is sitting in his car seat. Kelly has bright red lipstick on to matchher bright red adidas jacket.

Invaluable Support

Finding a care agency that can work with you and provide tailored support is also so important! My care company made sure I was part of the process from start to finish, recruiting my own PA’s and then they allow me to work on my own rotas, ensuring that I have the perfect PA for each task at hand!

It’s important to me that I have the control element just like anyone else.  The support I have had has literally changed and enhanced my life!

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All images copyright Kelly Perks-Bevington.

 

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