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Simon Smalley on….life as a disabled gay man in the 1980s

By Disability, Sex & disability, Undressing Disability

We asked the author Simon Smalley to write about experiencing the gay scene as a disabled teenager in 1981. Simon is the author of ‘That boy of yours wants looking at,’ a memoir about growing up in Nottingham. He shares his experiences as LGBT+ History Month comes to an end, highlighting the importance of recognising stories like his all year around.

1981 was the International Year of Disabled Persons, and during the blazing summer, our sweating postman delivered a buff envelope. 

Inside it was a green certificate declaring that I was now officially registered disabled.*

This categorisation had been organised by a Job Centre employee who, with a self-congratulatory white grin, informed me that it would provide my liberation.

Frowning at his curious choice of words, I just had to ask.

“How?”

“As a registered disabled person, you can travel free on the city buses during off-peak times.”

Big deal. Okay, it would get me to the hospital for my grueling physiotherapy sessions five days each week, but it wouldn’t change how I hated my disability. My hatred was primarily due to the local doctor failing to recognise the dislocation of my right hip when I was fifteen. Instead, he’d attributed the cause of my painful, laborious limp to rheumatoid arthritis of the knee. My condition had deteriorated until the next year when an orthopaedic consultant made a correct diagnosis. Although I was immediately hospitalised for corrective surgery, irretrievable damage was already done.

The slip of green paper didn’t provide the liberation that I yearned for as an isolated, frustrated nineteen-year-old gay man. I wanted to meet others like me but faced many self-imposed restrictions about achieving this. I gradually retreated into my psychological shell, still scarred from the beatings administered to me by bullies at school because of my sexuality. Their ammunition was doubled when they added my disability as further justification for attacking me, and ultimately, this unbearable campaign resulted in my suicide attempt.

In my later teenage years, the glossy gay magazines I bought depicted handsome hunks grinning confidently, no doubt at ease with their gym-trim bodies. But none of the tanned Adonises had an atrophied leg four inches shorter than its counterpart, thus necessitating the wearing of an ugly, built-up orthopaedic boot to maintain balance. A copy of the American gay magazine, Blueboy, featured an article about being gay and disabled, but it held no answers for me. I didn’t hate being gay; I only hated that I had allowed my disability to dominate my life and prevent me from meeting other gay men.

My simmering resentment finally boiled over. I phoned Gay Switchboard and explained my predicament. The man on the phone informed me that there were informal twice-weekly social gatherings, which would be a gentle way to ease myself onto the scene. My determination was so overpowering that I went the next evening, yet upon my arrival, I baulked that I had to navigate two flights of steep, narrow stairs to attain my real liberation. Later that evening, I continued my journey by visiting a gay pub and club. Probably because of the secretive aspect of gay life that still prevailed in those days, the scene required venues that were unintentionally inaccessible to lower-body disabled patrons, thus precluding their participation. 

To exemplify this, the gay bar in The Hearty Goodfellow was in the cellar and was reached by a switch-back stairway. Whispers nightclub occupied the ground floor of an old factory, with stairs leading to the vibrant subterranean disco. What was to become my absolute favourite nightclub, Part Two, had a street-level disco and cruise area, but its bar was at the top of several wide steps, and the quieter lounge was up on the first floor. None of these venues contained disabled toilets and were not wheelchair friendly. 

Towards the end of the twentieth century, the accessibility to pubs and clubs for nightlife-loving disabled people improved, as did the attitudes of staff towards those customers, with new build venues factoring accessibility into the design.

Although there are improvements and positive awareness of the disabled population, old stigmas remain. I once challenged a man who felt it acceptable to point at me and loudly complain to his friends about disabled people being allowed into a gay club. I told him that although my disability was evident, there are disabilities that are not immediately noticeable, such as his.

His outrage was instant. “I haven’t got a disability.”

My retaliation was calm. “Yes, you have. Your ignorance and prejudice are your disability.”

As his friends laughed at him, I knew that I’d attained a kind of liberation not intended by my receiving the slip of green paper.

*Please note: This green card and registration are from the disabled person’s Employment Act of 1944. The Government set up a Disabled Persons Employment Register. It was known as the ‘green card scheme’ because certificates were given to disabled people on green cards. This got repealed when the disability discrimination act 1995 and subsequently the Equality Act 2010 came into place.

You can read more of Simon’s work by visiting his website. 

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Censorship and social media: there are lots of cartoon social media buttons like a like, a heart, thumbs up on a peach background

Censorship and Social media: Can we talk?

By Sex & disability, The Love Lounge, Undressing Disability

We need to talk about social media. 

It doesn’t feel good out there and if we are honest, it hasn’t for a while. Undressing Disability is a sex-positive, informative, educational resource. We are a campaign run by, designed by, written by disabled and neurodivergent people, for the very community we are a part of. 

It started as a way to showcase how sexy our community is and that disabled people still want and enjoy sex. . It now includes a podcast, educational resources, a free support service called the Love Lounge, events and training. As part of this, we often share photos of sexy disabled people being their gorgeous selves. 

Hell, we’ve even organised the photoshoots!

Noticing the difference

However, it’s getting harder and harder to reach our audience. Earlier this year, we decided to come off Twitter/X after it became apparent our community was leaving – with good reason. While it was hard to say goodbye to the hard work we had put into it, it was the right decision.

Instagram has been the main social media page for us for some time. We have made so many beautiful friendships and collaborations through it. However, Instagram does not enjoy our content nor does it like many of the other sexual health educators, influencers, and workers who are all part of it. We do not use TikTok but do note that we’ve heard similar complaints about the content there. 

Visit our Undressing Disability Instagram page.

We’ve watched as our posts on consent or safer sex are barely viewed compared to ones that aren’t about anything sexual. We’ve tried hiding our words by writing seggs instead of sex. We’ve added the symbols or numbers in desperation, like k!nk instead of kink or even bre@sts instead of breasts. It’s time-consuming, problematic and infuriating. Not to mention, ableist when you consider how many people using screen readers might struggle, or people with dyslexia. It also looks ridiculous. 

It’s important to know the right words for our bodies, our sexual health and our sexuality. By removing such words, we are contributing to health illiteracy. Avoiding these words feeds into the idea that such language is dirty or bad. 

It’s what we have to do to avoid our account not being seen at all, banned, blocked or removed completely. There are so many ways in which this censorship affects disabled/neurodivergent people. We aim to make our social media content as accessible as possible by using things like alt text, checking the colour contrast and video captions. It’s frustrating to have to write @n@l because we can’t use the real word, making the text less accessible. Even putting these words into the actual graphic appears to no longer work. We do offer an alternative, that if people are struggling to read these words, they can get in touch with us and we will type it in a message – but this is a lengthy alternative that frankly, no one should have to do.

This censorship feels as if it ranges from the real (the wording, the blocking and banning) to the ridiculous (apparently we can no longer use the aubergine emoji as it’s flagged as sexy content) to the harmful (the loose wording around sexual roles could place LGBT+ people at a greater risk of censorship). 

How does this harm us?

Hands up if you feel your sex education at school was less than informative? Does the sex information in magazines feature disabled models or voices? How many books are written about sex positions or advice for disabled people vs non-disabled people?

Younger generations are turning to social media to get the education they feel they didn’t get at school. This includes disabled people who are often left out of the conversation entirely. If the chance to access safe, accurate information is removed then where does that leave us? 

Not to mention, creating content is time-consuming, expensive and exhausting. A lot of disabled people do not have the energy or resources to keep replacing content that is taken down nor should they have to.

We travel around the UK with the Love Lounge offering free advice to disabled people. We know that disabled people have a lot of questions about sex, relationships and love. We also know that they often feel lonely and depressed without a community. This is the positive side of social media, it can help people to access information and connect with people. 

Visit our Love Lounge page to find out how to get free, confidential support

So what is the answer?

The immediate response is usually to leave social media. This isn’t possible as to do so leaves charities like ours out of the conversation completely. It means we would struggle to speak to our audience at all. 

The ‘answer’ or the solution is for the social media companies to resolve. This means investing in humans instead of bots when it comes to content moderation and clearer guidelines around their wording. For those of us in the sexual information or education field, is it that they have a special verification mark so that readers know the content is fact-checked and researched?

It might even be that we leave the platform to its own devices and join one made by the community, for the community.

We might even get to use the aubergine emoji again.

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ADHD: A person sitting on a computer on a bed. They are relaxed and wearing a white t-shirt with long dark hair

Love Lounge: I have ADHD and I’m struggling to find a relationship

By Sex & disability, The Love Lounge, Undressing Disability

The question:

Hey,

I’m struggling with being newly diagnosed with ADHD in my mid 30’s. I’m very confident, sociable and achieve well at work too.  The area I struggle with is in relationships. I have had people cheat on me, I get bored easily so seek people who are as crazy and fun-loving as me and find dating apps just the worst! The chat is so boring and every time I don’t like someone, I think it must be my fault – why can’t I accept having a normal middle-of-the-road kind of relationship?

The other thing that is worrying me is medication for my ADHD. I like who I am; I like my carefree nature and have real sadness about losing that. Who am I underneath, after the medication suppresses the ADHD? I’m also in therapy at the moment to help adjust to my new diagnosis.

Thanks for your time,

Amy

The answer:

Hello Amy,

Not everybody wants the norm…and in today’s world, we’re able to be freer in our choices of how we date, co-habit, and make a family.  Particularly with more people being diagnosed or identifying as neurodivergent in their 30’s and 40’s this can help explain why they maybe haven’t felt like they’ve wanted or enjoyed the ‘mainstream’ kind of relationship.

Surely, we can’t all be cut out to fulfil society’s doctrine of monogamy and 2.4 children. So cut yourself some slack, you’re not strange or awkward to not find this vision appealing, or doable, for you. Own it and be confident about the type of person and relationship you’re wanting – and then hopefully you’ll attract like minded people. 

With regard to losing your carefree nature – I can understand that fear of loss. I think any kind of therapy, understanding oneself, healing etc can all feel scary because we only know what we know. Who will we be on the other side? That’s a legitimate concern. However, the medication (and therapy) will help you identify behaviours that don’t work for you now, or that create more chaos, and you can find suitable strategies to manage these. If the medication helps take the edge off, it doesn’t mean it will take away your personality – you’ll probably find it just helps you cope, organise, think more easily.

Hopefully alleviating stresses in your life.  It won’t eradicate ‘Amy’.  As you adapt, picking and choosing the traits that you’d like to keep that work for you, and letting go of those that don’t serve you well, people may think you’re behaving differently and therefore be slightly different with you too. That’s normal, you’re no longer playing the role in a game they’re used to you playing. Overtime, you will reassert your boundaries and they will respect this.

It’s a process, but you will only ever be a more enhanced version of you. Remember it is all within your control too – whether you stop meds, do more or less therapy, choose to let people know you’re on a new pathway etc.

Good luck!!

Zoe  

Want to read more about disability, love, sex and everything in between? Of course, you do! Why not visit our page with more Love Lounge questions

 

Dee Smith looks directly at the camera while smiling. They have long brown hair and are not wearing a top.

Dee Smith on…..disability advocate work

By Sex & disability, Undressing Disability

Dee Smith on…..disability advocate work

At just 27 years old, disabled model and writer Dee Smith has modelled for London Fashion Week, featured in Cosmopolitan magazine, and launched her own podcast.

We spoke to her about how she’s combining creativity and disability advocacy to champion self-expression and inclusivity for disabled people.

Tell us more about your disability advocacy work. What is it all about and what made you want to start advocating in the first place?

I’m creative. All my advocacy work revolves around things I love and am passionate about, such as creating a photoshoot to model or writing a poetry piece. I went from able bodied to disabled and all of a sudden I noticed how ableist and inaccessible the world is because of toxic stereotypes that are NOT true. So I intended to change that through creative avenues.

You’ve modelled at London Fashion week and share images from many amazing photoshoots via your Instagram. What do you love most about modelling?


The freedom to be creative! I get to be anyone and do anything. I can be artistic, scary, beautiful, sexy, honest. The possibilities are endless! Plus, it inspires others and shows people what I and other disabled people can do. It educates.

How has your relationship with sex and desirability changed since becoming disabled?

It was a journey. I went from thinking I was undesirable and unwanted because of my disability and what society has told us. I had to learn to love my own body and embrace my sexuality again. Learning to love all of me, disability and all, has been a journey.

What is one myth or stereotype about disabled people that you would like to dispel?
That we aren’t sexy, beautiful, and desirable with needs.

What are your goals for the future? Do you have any dreams you hope to realise or upcoming projects you’d like people to know about?

My goals are to advocate more in bigger, more mainstream media where disabled advocacy can be heard and taught. Hopefully branching out into acting. I also have a podcast on Spotify called Training Wheels where I talk to all kinds of people, from all walks of life, and ask them to share their stories.

You can find out more about Dee and support her work via her Instagram @dee_smithxoxo and her podcast “Training Wheels” is available to listen on Spotify.

A collection of light pink hearts

Sam Ranke on…the importance of finding your tribe

By Disability, Sex & disability, Undressing Disability

Most well rounded, emotionally available people would like to think they are somehow impermeable to bias. That being a good human arms you with a cloak against the unconscious bias that seeps in all around us. 

Unfortunately, the “good person, bad person” binary doesn’t exist when we look at prejudice and discriminatory ideologies and actions. Truth is we are all born into a world where harmful stereotypes and tropes are systemic, institutional, and darn insidious in their nature. We all inhale the unconscious bias smog that seeps in around us, through our media and social structures 

This also includes me. 

Three people are in a group: one person is wearing a black dress and holding a pink heart balloon, another is sitting in a wheelchair wearing a leopard print top and black hat. The other person is standing wearing all black

Oh yes, for years my ableism was real and stank! 

What’s more important however is how I got to where I am today. As a proud Disabled woman. 

At the ripe old age of thirty-eight, I’d describe myself as a cat mum, Buffy The Vampire Slayer über fan, home interior enthusiast. An actor, broadcaster, podcast host and consultant yet, my most treasured accolade to date is being able to say, without hesitation, that I am a proud Disabled woman. 

This, however, did not happen overnight. Coming to this conclusion and feeling it deep within my soul, in every ounce of my being, took years and still sometimes feels like an uphill battle just to maintain. 

For the past twelve years I’ve devoted almost all of my career and free time supporting and learning more about Disability culture and the Disabled community. Trying my best to amplify the voices of my fellow community whilst learning to love my own difference and feel pride in a part of my life that holds such presence in my day-to-day life. 

I was born with a condition often referred to as Brittle Bones, essentially my body does not produce type one cologne. This means my bones and organs are weak. I’ve had hundreds of fractures throughout my life and as a baby would be carried like a prized chihuahua on a cushion, too fragile to be cradled typically how babies would (this fact often makes me chuckle, as I question where my Diva behaviour comes from – (Clearly, we have the answer.)

I was the only person in my family with this condition and it came as a surprise to them all.  

Two years ago, I published my memoir You Are The Best Thing Since Sliced Bread and during this process I had the pleasure of interviewing my mum. Heartbreakingly she describes my birth more like a bereavement rather than a day of joy and celebration. Not only did no one come to the hospital to beam congratulations or go for a few drinks to wet the baby’s head. No, they all saw my birth as a tragedy. Even the doctors who delivered me braced my young parents for the worst: “I’m so sorry there is something wrong with your baby” an all too familiar sentence. 

You see, not only had I come into this world with a diagnosis – brittle bone disease – but I came into this world with a label. That label was Disabled. 

Synonymous with shouldn’t, couldn’t and wouldn’t.

I’ve spent all my life negating those labels. Yet, even as tenacious and feisty as I am, I too fed into the belief that Disabled meant lesser than. Less cool, less accomplished, and worst of all less deserving. 

I grew up with the same teenage angst and body image issues as most kids but on the whole, I liked who I was for the most part. I was sociable and had many friends. Sure, as I grew the more, I noticed how my Disability was an issue for others, but I still had a good grounding in self-love. I liked me, but I really didn’t like other Disabled people. 

In fact, growing up I didn’t ever mix with any other Disabled kids outside the parameters of going to my annual check-up at my specialist hospitals. 

Then and only then did I meet other people in wheelchairs or with the same condition as me, brittle bones. When I looked at them, all I saw were the stereotypes or at least that’s what I convinced myself I saw. 

Sam has long blonde hair and is wearing a light green hate. She is sitting in a wheelchair holding a red shiny balloon shaped like a heart. She wears a white shirt and black skirt

Truth is, I was so scared to identify with any part of my Disability identity that I didn’t allow myself to even befriend or acknowledge others from my community. 

This may come as a shock to some of you reading this as horrible as my ableism was, I wouldn’t say I am ashamed to admit that this is how I spent most of my childhood and young adulthood, rejecting disability culture and other Deaf and Disabled people. 

Can you blame me? 

I had no one telling me it was okay to be Disabled, more than ok, it was beautiful, and I should be unapologetic about it. 

I had no one tell me I was allowed to feel pride and love for a part of me that had shaped who I am today. No one had told me that I could be loved as a Disabled woman or feel like I could be admired and cherished. 

I had convinced myself that the only way I could and would be accepted by society was if I shunned anything that encapsulated any part of my Disability identity. 

This, however, was a very lonely path. 

Not only because I needed to be told that I am worthy of everything life has to offer and more but also because other Disabled people are bloody amazing and I absolutely needed some of that energy in my life. 

I’d lived in a world that pushed the divide and conquer narrative because alone we are easy to manipulate. Alone, we are not strong, alone we are vulnerable. 

What I really needed was my tribe. Because once I found them my life changed forever. 

This is where I do a shameless plug for my memoir You Are The Best Thing Since Sliced Bread available in hardback and audio, to find out exactly what happened when I embraced my Disability identity, my tribe and my community. 

You can purchase You Are The Best Thing Since Sliced Bread by visiting this link to the Amazon website.

Sex and pleasure for disabled women in Nigeria

By Disability, Sex & disability, Undressing Disability

In this interview, sexual rights activist and researcher Susie Jolly interviews Ejiro Sharon Okotie, development professional in gender, social inclusion and disability rights. Ejiro shares her trailblazing advocacy work supporting disabled women in Nigeria with their pleasure and sexual expression, and why the need for societal recognition of their sexual rights is more important than ever before.

Susie: Tell us more about your research and advocacy work. What is it all about and what was the motivation behind this work in the first place?

Ejiro: In 2017-2018, while I was running training for disabled people in Nigeria on sexual and reproductive health and rights, one of the participants who had a Spinal Cord Injury shared, “After my accident, my biggest worry was if I still could have sex, less so my injury. However, I was too ashamed to ask the doctors and lived with that anguish for four months”. 

Another participant asked “At what point does masturbation become unhealthy?” Pleasurable activities like masturbation had been demonised and disabled people who engaged in it, were regarded as corrupt, bad, spoilt etc.

Meeting such project beneficiaries and hearing their stories made me realise how narrow our project had been and the huge gap that existed around the subject of sexuality and pleasure, especially as it related to disabled women. I realised this was a gap in the inclusive Sexual and Reproductive Health (SRH) project I had worked on (implemented through a collaboration between the Nigeria Association of the Blind (NAB) and the Journalists Against AIDS Nigeria (JAAIDS)). 

I became curious to delve deeper into this area of research, to understand if exploring sexuality and pleasure could contribute to the empowerment of disabled women in Nigeria. My advocacy seeks to enable healthy expression of sexuality and pleasure for disabled women, and societal recognition of the need for their ability to exercise their sexual rights.

Susie: What are you keen to highlight about the lived experience of disabled women in Nigeria?

Ejiro: Being a disabled woman myself, a common phrase I heard when I first began working in development was “disabled women get sex by chance and not by choice”. I want to highlight the fact that the narrative of disabled women only having negative experiences of sexuality such as rape, sexual abuse or assault is not the whole story. Disabled women also have positive, healthy romantic and sexual relationships and experiences, and possess agency in exercising their sexual rights. This was very evident in a documentary we produced as an offshoot from the research. 

Susie: How are you seeing prejudice and ableism affect disabled women in Nigeria when it comes to their sexual health and sexual expression?

Ejiro: In Nigeria, as in many other parts of the world, only a complete and functioning body is assumed to allow sexual expression or enjoyment of sexual rights and sexual health. The general perception is that disabled women do not, or should not, have sexual needs or desires, require sexual health information/services or even think about expressing their sexuality. 

These ideas typically come from the immediate families of these disabled women, and extend into society. This lack of recognition of the sexuality and sexual rights of disabled women continues to disempower them, and make them more vulnerable to sexual and gender-based violence (SGBV) and ill-health.

Susie: What changes would you like to see happen to better support disabled Nigerian women with their sexual health and sexual expression? 

Ejiro: A key change must be intentionality from parents, care-givers and broader society in Nigeria on effectively engaging disabled women on their sexual health, providing avenues for healthy conversations around their sexuality, supporting their efforts at a healthy expression of their sexuality and sexual rights, and providing safe spaces for disabled women to share positive experiences and support other disabled women who are survivors of SGBV or other violations of their sexual rights. 

We need a more responsive, sensitive, and proactive Nigerian population (families, community members, duty bearers) to foster an inclusive environment for disabled women as it relates to their sexual health and sexual rights.

Susie: Tell us more about the organisation you are running for disabled and youth.

Ejiro: The Hope Inspired Foundation for Women and Youth with disabilities (HIFWYD), is a woman-led organisation, founded on 27th February 2015, and registered as an Organisation of Persons with Disabilities in Nigeria. The Foundation was established to empower and amplify the voices of women and youth with disabilities, with a mission committed to promoting and protecting rights and inclusive development through advocacy, capacity-building, economic empowerment/livelihood support, and public engagement. 

HIFWYD envisions a society where everyone, regardless of disability or any circumstances, can realise their potential and live their dreams. HIFWYD has implemented several projects on entrepreneurship development for disabled women, as well as life-skills programs for disabled girls. 

More recently we have undertaken several projects to improve access to inclusive, comprehensive sexuality education, especially for disabled women/girls in rural communities, as well as building their capacities as self-advocates to realise their rights through better implementation of Disability laws in Nigeria. HIFWYD has been supported by several donor partners with the most recent being the Disability Rights Fund (DRF/DRAF) and World Connect.

About Ejiro

Ejiro Sharon Okotie, is a Development Professional focusing on Gender, Social Inclusion, Disability Rights and most recently, Sexuality. Currently she works as the Gender and Social Inclusion Specialist for the USAID State Accountability Transparency and Effectiveness (State2State) Activity, implemented by DAI Nigeria. She is a Chevening Alumnus with a Masters in Development Studies from the Institute of Development Studies (IDS) at the University of Sussex. As the Founder of the Hope Inspired Foundation for Women and Youth with Disabilities (HIFWYD), a DPO in Nigeria, Ejiro works to empower women and youths with Disabilities for productive living and equal participation in society. 

For more information about The Inspired Foundation, check out their Instagram.

About Susie

Susie Jolly is a sexual rights activist and researcher, and Honorary Associate at the Institute of Development Studies. She previously led the Ford Foundation China portfolio on sexuality education, with a 2 million US dollar annual budget, developing the strategy ‘the marginalised educate the mainstream’. This included supporting disabled women and young people to organise and advocate, supporting disabled activists to work on sexuality, and sexuality educators to learn from disabled people’s organisations on how to become more inclusive.

Two women sitting in bed kiss while being lit up by fairly lights to highlight how ADHD may affect your sex life.

ADHD Awareness Month: can ADHD affect your sex life?

By Disability, Undressing Disability

October marks the start of ADHD (Attention Deficit Hyperactive Disorder) Awareness Month but what does that actually mean for those of us who are diagnosed with it?

When it comes to ADHD, I can’t tell you the number of ways it affects me from my workplace to my travel to, unfortunately, my relationships. There is so little out there for adults with ADHD in terms of research, especially for those of us who are queer, transgender or non-binary. When it comes to sex, the information can leave a lot to be desired.

However embracing our sexuality, and our ADHD, is important. While ADHD can make things like choosing the right toy or reaching orgasm more difficult, it’s not impossible. Communication and education can go a long way.

Here are three of the biggest things I wish I had known about sex, my brain and ADHD.

1 – Focus

One of the biggest stereotypes about ADHD is that we can’t focus. In reality, it’s not quite that simple as ADHD-ers struggle with regulating focus- either too much or too little. We cannot get our brain to focus if we don’t want to or break focus if we are locked into something we find interesting.

In the bedroom, that lack of focus can be a libido killer in that it can make it hard for us to stay in the mood, maintain an erection or achieve orgasm. The results of that can be a frustrating experience for everyone involved.

The opposite is true sometimes in that we can be so focused on everything around us that we find it hard to make time for sex. Coupled with a lower sex drive, I find that I can get so lost in my work that I fail to notice the hours slip past before it’s too late and a partner is already asleep.

Read more: As a neurodivergent person, how do I recognise abuse in my relationship?

2- Overwhelming

When it comes to sex toys, I never really got the hype but I also never considered this may not be my fault. So few are designed with neurodiversity in mind that they often arrive with overly complicated instructions, flashing buttons and LED-what-the-hells!??! By the time I have navigated the box, I have little spare mental energy to engage with pairing it to my phone.

Overwhelm can lead to a lot of not-sexy emotions including frustration, anger and sadness. Many ADHD people will experience shutdowns or meltdowns which are exhausting and can cause someone to completely withdraw.

It’s not just about toys though as some lubricants or massage lotions can be too much for neurodivergent people. The smell or texture can be too overpowering or feel uncomfortable on the skin. If that happens, it can make people feel awkward, anxious, nauseated or panicked. It may also ruin the mood by being the only thing they can notice in the room.

3 – Risk

When we make a decision to have sex we calculate a risk. We make a decision to wear a condom, use lubricants that are safe with our toys or bodies or we choose our partners carefully based on a number of factors. Those of us with ADHD struggle with decision-making as we can be impulsive and look for the potential reward that comes with taking a risk.

The bad thing is that there isn’t always a reward. A study in 2017 revealed that teenage girls with ADHD are three times more likely to get pregnant accidentally while ADHD boys are twice as likely to get someone pregnant.

Another study on medicated and unmedicated ADHD patients revealed those without medication were three times as likely to contract a sexually transmitted infection. Interestingly, the same study showed that medication cut this risk by 40%.

Interested in ADHD? Here are more stories you might like to read:

A graphic of a man showering with a thought bubble that say SEX, behind him are two carers

Disability, Sexual Expression and the Privilege of Privacy

By Disability, Undressing Disability

Let’s take a look at the realities many disabled people face around sexual expression and intimate relationships.

This article is written by Zoe Lloyd, a counsellor and disabled woman who has live-in PA’s. It is intended to provide insight for:

  • care home workers
  • carers and personal assistants
  • occupational therapists and physiotherapists
  • those working and supporting disabled people to enjoy every aspect of a fulfilling adult life.

Question

To give an insight, let’s start with a few questions to help set the scene.

  •  What do you do to prepare for a date or a naughty weekend away?
  •  Do you need help with intimate personal grooming such as hair removal or applying body lotion to make you feel and look your best?
  • Who do you tell when you’re planning to have sex?
  • Who helps you to open the packaging on your new sexy lingerie or sex toy?

Privacy

We’re guessing many of you get ready for a hot date in private and don’t have to tell anyone else what you’re up to. Some of us will not have that freedom of privacy and will rely on a carer/PA to help us get ready for some intimate fun.
This could be requiring help to shave ‘down there’ or packing sexy underwear and sex toys into a case…. someone knows what your plans are!
Many disabled people live their lives in this way, without the privilege of privacy.

a graphic of a male showering with two carers in the background and thought bubble that reads SEX coming from his head

Embarrassment and Anxiety

All of these scenarios where someone is left feeling quite exposed by their lack of privacy, can lead to a constant underlying hum of embarrassment and anxiety.

No matter how much you may laugh it off or pretend you’re confident, having no privacy affects you.

Other people don’t need to have someone involved in these processes unless they choose to share. That’s the key – our lack of choice. If we need to pack a case for a sexy weekend, and can’t physically do it ourselves, then someone else will always know what you’re taking and what you’re planning. Therefore, we either deal with that, or we would have to deny the sexual part of ourselves forever. All just to save some embarrassment. Disabled sexuality should not be a taboo topic, whether that be in residential care homes, in PA/client relationships, or wider society.

Disclosure to a PA/Carer

Another point to consider is which carer/PA would you feel comfortable involving in this intimate side of your life? Disabled people can have several carers all of whom come with their own personal set of beliefs and embarrassment levels which can cause more barriers.

Imagine planning your sex life around the days a specific carer –the most approachable one– is working? This is a perfect example of the lack of spontaneity many disabled people face. It’s great when you’ve created a relationship with your carer where you feel happy to disclose these details. However many people don’t get that luxury.

Plus there’s having the confidence in yourself to ‘own’ your sexuality and not be concerned about someone else knowing your private life. Finding this secure place within yourself can be a lengthy process. Yes, you’ll see Instagram influencers who appear very comfortable with their sexuality, naturally that’s why they’re in the public eye! They provide a voice for those without the confidence. Unfortunately many people feel trapped,  still too ashamed to share their sexual desires with their carer. Resulting in their carer not knowing how to help facilitate access to their wishes.

Starting the Conversation

How can carers and care giving professionals improve this situation?

  1. Tell your client know you are open to having this kind of conversation. Take the awkwardness away before it gets to that point. For example you could say, ‘I’m here to support you in whatever way I can. I’m happy to talk or help you with anything – even if it’s sex stuff! I know it can be embarrassing, so I’m letting you know you don’t have to feel embarrassed with me’.
  2. If it feels appropriate, share a story of your own, so they don’t feel there’s such an imbalance of having privacy exposed.
  3. Depending on your work environment, have literature or symbols (say Pride colours for example) visible. This way the client knows that the PA/Carer or organisation is a safe setting of acceptance. These items can be used as a prompt for a conversation starter.
  4. Judging each situation differently. You may be able to suggest, in a light-hearted manner, ‘oh are you going to take some sexy underwear?’, or ‘bet you’re going to get all spruced up – want me to help?’ This breaks the barrier for them and the client can then say yes or no more easily.

 

Sexual Expression Training

Enhance The UK runs two fantastic training courses on sexual expression, the first of their kind in the UK. The courses are designed to support residential care home workers and those working in the field to better understand disability sexuality and an individual’s right to sexual expression. Learn more via the links below or get in touch to enquire about available dates.

Disability and Sexual Expression Training

Sexuality, Sexual Expression and Relationships Training for Care Providers

 

 

blurry gold sparkles

Sex and Bodily Fluids

By Sex & disability, The Love Lounge

The Question

Dear Love Lounge,

I’ve got a question about sex and bodily fluids. I’m in a new relationship with a wonderful woman who uses a catheter and a stoma bag. She has a spinal injury. We haven’t yet had sex but have had very small discussions about it.  She says everything will be ok, and she’ll handle it.  But it’s something I’ve never come across before and would like to know more about it before we do the deed. I feel quite nervous about sex and bodily fluids.

Can you help as I don’t want to ask my girlfriend the little details as she doesn’t seem that keen to talk in depth about it – she says it makes her feel unsexy.

Thanks,

Luke

 

The Answer

Hi Luke,

I can totally understand your trepidation around the area.  As it’s a new relationship your girlfriend may not want to risk losing the ‘spark’ by bombarding you with medical details.  Hopefully once you decide to become more intimate, and she sees you’re not put off by it, the pathways of detailed communication will open up.

And it will probably need to, so that you’re aware of what it’s like for her and to be aware of what might happen.  Sex and bodily fluids, when using a catheter and stoma bag can be a concern if you’re new to it.  I have asked for some advice from our friends at the Spinal Injuries Association to let you know what to expect.

 

Catheters

Your girlfriend will have either a suprapubic catheter (a catheter inserted through the abdomen into the bladder) or a urethral catheter. With a suprapubic, it can be taped to the abdomen to prevent it getting in the way.  It can be drained beforehand and then a spigot or catheter valve can be attached to reduce the amount of tubing. This means you can do away with the drainage bag, so it’s more discreet whilst you’re being intimate.

With a urethral catheter, it can be carefully taped away from the genitals, on the leg or abdomen, allowing some slack to avoid causing trauma.  You’ll need to be mindful of your movement in having sex with a urethral catheter; but it should all be ok if taped securely.  It could be dislodged if accidentally pulled, so be careful!  As the urethra is so close to the vagina, both of you may be aware of the catheter rubbing against your skin.  Again, this shouldn’t be a problem but just something to be aware of.

 

Stomas

With a stoma, the bag collects the waste and this can happen at any time during the day or night.  Your partner may want to empty her bowel before you get down to business.  This can be done with suppositories or an irrigation system (water is flushed through the bowel via the rectum, and it flushes out the stool, to clear the lower part of the bowel).  Then, a cap is placed over the stoma so that the bag is not needed while you have sex.   For peace of mind about any leakages with sex and bodily fluids, it may be wise to use a mattress protector anyway.

Hopefully this information will ease your worries, now you know what to expect.  Perhaps opening the dialogue with your partner, with your new-found understanding, will allay her fears of the situation not seeming sexy.  Showing her you’re at ease with it and want to make her feel as comfortable as possible too, should lead to you both having an enjoyable, happy sex life.

Have fun!

Zoe x

Contact Us

Everyone who writes into our Love Lounge receives an email with a private answer to their question. We then anonymise the Q&A and share them here on our website to help others who may be struggling with the same concern.  Get in touch if you’d like some advice.

Keep up to date with all our Love Lounge articles by following us on Instagram @UndressingDisability or on twitter @ETUKUndressing.

#UndressingDisability

 

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graphic of a male and female in different sex positions using a liberator wedge

Adaptive Tools for Sex Toys

By The Love Lounge

The Question:

Dear Love Lounge,

I heard about you from some of the sex educators on Instagram. I want to know if there are any adaptive tools for sex toys and accessories that can make lube more accessible.

Cheers,

T.

 

Our Answer

Hi T,

You’re in luck! Yes, there are some great adaptive tools for sex toys and accessories that can make lube more accessible.

Liberator Bonbon

One option is to use a sex toy mount like the Liberator Bonbon, pictured below.

adaptive sex toys - a red wedge shaped piece of furniture with a vibrator on the curved side

The Bonbon is a piece of Bedroom furniture that can help someone who has poor dexterity. The toy is placed in the mount and the user can then mount the toy.  Liberator also make other sex toy mounts including the Axis and the Wanda, 2 different styles of Magic wand mounts which give options of how they are used.

On A Mission

Penis owners are not left out when it comes to adaptive tools for sex toys.  Liberator also make Fleshlight mounts such as the ‘On a Mission’ which give the user the chance of a hands free experience. There’s also the Keon by Kiroo which is an automated Masturbator.

Sportsheets Thigh Strap

Another way of using sex toys is to use mounts and harnesses. The Sportsheets Thigh Strap can be used to attach a dildo to the thigh of a seated person. It’s a popular choice for wheelchair users.

Some people prefer sex toys with a suction base so they can stick the item to a smooth surface. This enables them to mount it, giving a hands free experience.

LaPalma

Another adaptive tool for sexy toys that can be used to help someone hold a vibrator is the LaPalma mount from Spareparts. (Pictured below)

LaPalma - looks like a black fingerless glove which has space for a vibrator

The user can attach a dildo to the O mount on the palm. The Lapalma also has 2 pouches that you can insert a Vibrating bullet into to make the dildo vibrate.  It is a useful product for those who suffer with arthritis and other dexterity issues.

Lube

There are a couple of ways to make using lube more accessible.

  1. Choose a brand that uses pump bottles such überlube. This is because some lube bottles are made of thick plastic and are hard to squeeze.
  2. Use an automatic lube dispenser such as the Pulse which also warms the lube. The pulse is not cheap but a lower cost alternative is to use an automatic soap dispenser. Be aware that some dispensers may struggle if you use a really thick lube.

Liberator Fascinator

red throw / fabric sheet

Cleaning up after sex can be an issue for some people. One way to make this a bit easier can be to use a throw such as the Liberator Fascinator which comes in a range of sizes.  They are fluid proof and can be thrown in the washing machine afterwards.

If you want something a bit more permanent on the bed you can get fluid proof sheets made from PVC or Polyurethane which protect your bed and are easy to clean up.

 

Learn More

Follow our Undressing Disability campaign on twitter and Instagram to keep in the loop on all the topics and questions we cover from our Love Lounge. If you have a question you’d like answered then get in touch. We answer each questions privately via email, and then make it anonymous and share it on our website to help others who may be too shy to ask.

#UndressingDisability

 

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