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Jan 22
ADHD: A person sitting on a computer on a bed. They are relaxed and wearing a white t-shirt with long dark hair

Love Lounge: I have ADHD and I’m struggling to find a relationship

By Sex & disability, The Love Lounge, Undressing Disability

The question:

Hey,

I’m struggling with being newly diagnosed with ADHD in my mid 30’s. I’m very confident, sociable and achieve well at work too.  The area I struggle with is in relationships. I have had people cheat on me, I get bored easily so seek people who are as crazy and fun-loving as me and find dating apps just the worst! The chat is so boring and every time I don’t like someone, I think it must be my fault – why can’t I accept having a normal middle-of-the-road kind of relationship?

The other thing that is worrying me is medication for my ADHD. I like who I am; I like my carefree nature and have real sadness about losing that. Who am I underneath, after the medication suppresses the ADHD? I’m also in therapy at the moment to help adjust to my new diagnosis.

Thanks for your time,

Amy

The answer:

Hello Amy,

Not everybody wants the norm…and in today’s world, we’re able to be freer in our choices of how we date, co-habit, and make a family.  Particularly with more people being diagnosed or identifying as neurodivergent in their 30’s and 40’s this can help explain why they maybe haven’t felt like they’ve wanted or enjoyed the ‘mainstream’ kind of relationship.

Surely, we can’t all be cut out to fulfil society’s doctrine of monogamy and 2.4 children. So cut yourself some slack, you’re not strange or awkward to not find this vision appealing, or doable, for you. Own it and be confident about the type of person and relationship you’re wanting – and then hopefully you’ll attract like minded people. 

With regard to losing your carefree nature – I can understand that fear of loss. I think any kind of therapy, understanding oneself, healing etc can all feel scary because we only know what we know. Who will we be on the other side? That’s a legitimate concern. However, the medication (and therapy) will help you identify behaviours that don’t work for you now, or that create more chaos, and you can find suitable strategies to manage these. If the medication helps take the edge off, it doesn’t mean it will take away your personality – you’ll probably find it just helps you cope, organise, think more easily.

Hopefully alleviating stresses in your life.  It won’t eradicate ‘Amy’.  As you adapt, picking and choosing the traits that you’d like to keep that work for you, and letting go of those that don’t serve you well, people may think you’re behaving differently and therefore be slightly different with you too. That’s normal, you’re no longer playing the role in a game they’re used to you playing. Overtime, you will reassert your boundaries and they will respect this.

It’s a process, but you will only ever be a more enhanced version of you. Remember it is all within your control too – whether you stop meds, do more or less therapy, choose to let people know you’re on a new pathway etc.

Good luck!!

Zoe  

Want to read more about disability, love, sex and everything in between? Of course, you do! Why not visit our page with more Love Lounge questions

 

Jan 06
Accessible Shelters: a person has their hand on the wheel of a wheelchair while facing a long corridoor. We cannot see their face. Only their hand

Six tips for making your shelter or refuge accessible

By Undressing Disability

Data released by Sky News from Women’s Aid shows that “less than 1% of refuge spaces for women fleeing abuse are suitable for wheelchair users.”

You can read the story by visiting the Sky News page 

It can be really difficult to know where to start when it comes to making your shelter more accessible. There are lots of larger changes such as installing ramps or accessible toilets that can take time, planning, funding and builders.

However, there are lots of small changes you can make that will help to make things more inclusive.

Here are 6 changes you can make:

1 – Repeat repeat rephrase

Someone who is coming to a shelter may be in a state of panic or feeling incredibly anxious. When we are anxious, it can be hard to breathe and communicate especially if someone also has a communication impairment. It’s not rude to ask someone to repeat themselves if you are not sure what they are saying. Ask them twice to repeat themselves before you ask them to rephrase what they are asking you. It could be that when they rephrase what they are trying to say, you catch enough of the sentence to understand what they are saying.

Be patient and allow them more time but keep your body language relaxed. If you relax, they will also start to feel less anxious.

2 – Learn how to guide a visually impaired person

It can be really scary leaving someone who is being violent or manipulative, especially if you are relying on that person for assistance. Making sure shelter staff are trained in how to guide someone safely and properly is vital. Booking disability awareness training can help but there are some quick steps to remember:

1 – Introduce yourself and say you work/volunteer for the shelter and tell them what is going to happen. Don’t just lead them somewhere but ask if they need assistance.
2 – Offer a shoulder or an elbow: Ask if it is okay for you to take their hand and place it on your elbow or shoulder. If someone is struggling with body contact or touch, it’s important to get their consent first before taking their hand.
3 – Guide goes first: You need to be the person in front so that they are following your direction.
4 – Move items and people: Move as many obstacles out of the way as possible. It’s good practice going forward to make sure that things like A signage (wet floor signs etc) are not in the middle of the room or that there are no objects for someone to fall over.
5 – Let someone know you are leaving: If you get that person to their seat or the room they need then let them know you are going to go. Otherwise, they may not know where you are.

Want to learn more about guiding? Why not consider booking disability awareness training by visiting our website

3 – Guide Dogs

Not all visually impaired people will have guide dogs but some do. You may also find that some neurodivergent people have support dogs. There are some simple things you can do to accommodate a person’s guide or assistance animal.
1 – Provide a bed for them to rest
2 – Allocate an outdoor space for the animal to go to the toilet and a place to dispose of waste
3 – Remember that people may not like their animals being touched or fed by anyone else. It’s important for staff to remember this.
4 – Provide a water dish if possible or access to clean water.

4 – Consider your forms and information

For some neurodivergent people, forms or large blocks of text can be really tough. Can you consider alternatives for people?
There are lots of different alternatives to written forms or information that you could consider.
Is it possible to create a video which describes the support service or an audio description that can be played? Could you use large print versions of any information or forms that can be downloaded from your website? If someone is available to help, could you assign a volunteer to help a person fill in any forms they are finding difficult?

5 – Ask don’t assume

Ask don’t assume. It’s best to ask someone what their access needs may be. Not every disabled person will have the same access needs. It’s important to listen to what someone tells you about their access requirements. If someone tells you they don’t need assistance or any changes then this should be respected.

Also, if someone tells you that any changes you have implemented are not working, be understanding and initiate a conversation on what to do next.

Check-in after time has passed to make sure that a person’s access needs haven’t changed.

6 – Being aware of your contact details:

With 1 in 6 of the UK population experiencing hearing loss and D/deaf women being twice as likely to experience domestic abuse, refuges must be accessible for people who are D/deaf.
Consider how D/deaf and hard-of-hearing people can contact your support service.

There are lots of options, including:
1- Providing a mobile number so people can text you
2- Providing a monitored email address
3- Ensuring staff are aware of the Relay UK service – a free service which allows deaf or hard of hearing people to communicate with you via an operator who types what is said for the deaf person and speaks, if needed, what they type. All they need is a free downloadable app and access to the internet.

We also offer free downloadable resources that can help you to learn more.

We would suggest our resource on making shelters accessible for Deaf people and our other resource on accessible retail spaces. This includes practical advice on making buildings accessible that could be adapted for wheelchair users.

Download our resources by visiting our dedicated page

Nov 21
A white wine glass against a black background and warm fairy lights. A big pink circle announces there is an event called Mingle all the way on dec 4th

Enhance the UK/Undressing Disability – Mingle all the Way

By Event, Sex & disability, The Love Lounge, Undressing Disability

Enhance the UK/ Undressing Disability would like to invite you to a ‘mingle all the way’ festive evening to celebrate all their achievements this year.

Enhance the UK is a user-led disability charity that not only runs worldwide campaigns around dispelling myths about disability but also delivers groundbreaking training across the UK and beyond. Join us to find out more!

We have transformed our central London location into an alpine , ski retreat lodge and want you to pop in and get all cosy for the evening.

Included in this invite will be :

  • Free drinks and festive nibbles
  • Entertainment from the first and only amputee drag queen in the world -Eileen Eifell (I lean – I fell….)
  • Photo opportunities in our amazing decor and photobooth
  • Much more…..

It’s a unique opportunity to connect with like-minded professionals while celebrating the season in style!

At the event, we’ll also be sharing information about our disability awareness training and unveiling new courses for 2025.

Event Details:
🗓 Date: Wednesday, December 4
🕒 Time: 5:30 – 9 pm
📍 Location: Sketch House 36 Clifton Terrace Finsbury Park London N4 3JP

Please RSVP to secure your spot by visiting the event link

*Please email hello@enhancetheuk.org for any access or dietary requirements. Examples of access requirements could include accessible route maps, BSL interpreters, accessible toilets, BSL interpreters or quiet rooms.

Nov 19
Disability and friendship: A person using a wheelchair. A close up of their hand on the wheel of the chair with a room in the background

Disability and friendship: How do I open up to my friends about what life is really like for me?

By The Love Lounge, Undressing Disability

The question:

I’m in my mid 60’s and am having more and more health problems of late.  The last few years have been difficult. But what I find most problematic is my circle of friends not really understanding what life is like for me.

I laugh a lot with people, so they think I’m ok and they don’t seem to remember about the issues I have told them. They either act surprised when I mention things or scoff as though it’s not really that bad.

I feel really misunderstood and don’t know how to change it. It’s affecting my confidence when I go out with them. 

Ali 

The Answer:

Hi Ali,

This is hard when you don’t feel understood and then, as a result, feel unsupported by your friends. I remember having similar feelings years ago and my therapist telling me that it’s also my responsibility to tell people what’s really going on. It’s unfair for them to be expected to know how it really is for you when you haven’t communicated everything to them.

Perhaps because you’re jokey and smiley they don’t see the whole picture, and then when you say something that feels serious to you, it doesn’t land as it should perhaps because of the delivery. If you find it hard to hold the space and be serious in telling your story, perhaps choose one friend who you are closer to and ask to have a chat away from the group. Tell them what’s going on for you, health-wise but also that you find it hard to be taken seriously by the group. You could also ask them to be your spokesperson and tell the rest of the group for you.

Hopefully this will prompt them to acknowledge your feelings more and I’m sure they will come and support you once they know how you’ve been feeling. Another option, if you can’t verbalise it well, is to write to them (as a group or to your closest friend) and speak freely that way.

I’m sure they love and support you and are just missing your cues – then the more you lose confidence the harder it is for you to make yourself heard.

Communicate well, be honest and the love will come back to you!

Warmly,

Zoe

Love this? Read more Love Lounge questions by visiting our blog page.

 

Nov 08
A red and black typewriter with one single sheet of white paper

Love Lounge: Disabled, deaf and looking for love….help!

By Sex & disability, The Love Lounge, Undressing Disability

The question:

Dear Love Lounge,

I’m disabled (I’m deaf and have difficulty with mobility) and have been keenly watching Married At First Sight.  It’s been great to see a deaf person represented in Ross. But it’s been making me feel even more sad because I see how easily he’s got into this relationship with Sacha and how she’s so accepting of him, and I have never experienced that.  I feel like more of a failure – am I so bad? Am I ugly? Or is it because I also have mobility issues that people don’t want me?

I know I’m being self-pitying but I’m cross that it has made me feel like this when I should be excited that a deaf person is being seen on tv and having a successful relationship.

Sorry but I just need some support.

Sam

The answer:

Hi Sam,

I can really appreciate how you feel when you see others being able to do something that you’re really wanting to do, especially when you see them with the thing that you feel limits you.

It could be that you perceive your disability as a negative thing and don’t go out there with your confident pants on and feeling proud of who you are. But that’s never easy, particularly if your self-worth has been dented.

Have you had therapy before to learn to be comfortable with your identity and how you are in the world? It sounds like this could be useful for you. I had lots of therapy until I learnt to not be so hard on myself and have some self-acceptance and kindness towards myself. It can be a looong road, but a very worthwhile one.

Once confidence oozes out of you, people will be attracted to that, and your disability won’t be the main thing they focus on.

Whilst MAFS is great to watch, let’s remember it’s for entertainment and they have had the amazing opportunity of the experts matching them with someone. If only we could all have that! However, that’s not to undermine that Ross is obviously very confident, attractive and used to having relationships and you seeing that makes you feel worse.

Myself and other colleagues can also feel inadequate when we see other disabled people on social media being ultra positive and looking like they can conquer anything.. it’s a real thing, even for us who advocate for disabled people and have confidence around it. What we see either on TV or social media is never the whole story, this is why it’s so important for everyone to be authentic and show vulnerabilities too… if you spoke to Ross, you’d surely hear that he’s lacked confidence, found times hard etc. We all have. Try and remember that, and you will have your own story. You may be doing things that other people wish they could achieve.

With more representation though, non-disabled people will realise they can have lovely relationships with disabled people and it is not something to be nervous about.

Try and get yourself out there, socialise with like-minded people, who have similar interests as you and shine from within. That’s what attracts people.

Write out 10 things you love about yourself now and say them to yourself in the mirror every morning and night. Let’s start building your self worth and confidence!

Take care,
Zoe

Looking to read more Love Lounge questions? Why not visit our Love Lounge blog to find more questions and the answers written by our experts.

Nov 04
transgender flag in pink, blue and white

Ayman Eckford on …. being a trans* person and having ADHD

By Sex & disability, Undressing Disability

Ayman Eckford is many things – a human rights activist, a writer, a Ukrainian refugee to name a few. Ayman is also trans* and has ADHD. In this personal piece, Ayman shares their take on the intersection between trans* and ADHD experiences, and how we can all do better to support trans* and ADHD kids to live life as their authentic selves.

Note: Ayman has chosen to use an asterisk after the word “trans” throughout this article, which denotes a number of identities within the gender identity spectrum.

There is a lot of commonality between being a trans* person and being an ADHDer. For example, most of the books about your condition are written by people who have never experienced it.

At the same time, there are a lot of people like you in the modern day media, even some celebrities are trans* or ADHDers, but despite that, if you are young, it may feel like you are the only one in the universe. Maybe you don’t even know who you are. Or if you do, you may feel doomed because the world is trying to change you.

Being trans and neurodivergent

At least this is how it was for me, when I had no idea what the world “trans” meant but was a three-year-old transgender child who was considered to be a girl but knew that they were anything but a girl. I was also a kid who was “naughty,” a kid who was always rushing and fussing around. I spent almost all my time in kindergarten running around, unable to concentrate or speak with my peers. I couldn’t sit still in my school lessons. I didn’t want any attention, I didn’t want to be different and be bullied, but I couldn’t help it. I just stood up and began to walk around the class during lessons, knowing how angry my parents would be, knowing how other kids would make jokes about me – maybe even kick me – because of it. But I just couldn’t help it. My parents didn’t know that I’m an ADHDer and Autistic, or, more likely, they were too scared to find out. My parents also didn’t know that I’m trans, bullying me for any attempts to use a male pronoun. They would abuse me even more if they knew.

For them, I was sinful, lazy, and broken, and I believed that I was, until I realised that it’s the world that is broken because of its ignorance, not me. This realisation helped me to create the first pro-neurodiversity group in Ukraine and Russia, and become one of the first people to speak and write about trans* neurodivergent experiences in Eastern Europe. I was trying to be the person I needed when I was younger.

Society lets trans* and ADHD kids down. Even some modern Americans and British journalists that accept the LGBT+ community and behave respectfully toward neurodivergent adults, are trying to silence trans* and neurodivergent teenagers, and justify all those “well-meaning,” conservative parents who broke their queer and neurodivergent children.

It is interesting that despite the hardship of living with a double stigma, there are a lot of openly trans* ADHDer activists both in the disability rights space and in the LGBT+ community. Some studies show that there are more trans* people among ADHDers than among the general population, but the reason is still unknown. Maybe we are just used to being different. Maybe, despite everything, it is not so scary to recognise one more “atypical” trait when you’ve already considered it to be weird. Maybe there is a real correlation.

Transgender and neurodiversity acceptance

And I think that the neurodiversity paradigm could help a lot in trans* acceptance. Neurodiversity paradigm is basically an idea that there is no one right way that the human brain should work, and that neurological diversity is as normal as different ethnicities and sexual orientations.

Let me make it clear: I am not considering ADHD and autism to be a disorder. I would hate the idea of research with a goal to prevent people like me from being born, or prevent another child from thinking the way I’m thinking. But at the same time, for me, ADHD is a disability, not only because society disables me but also because I need dopamine medication to better deal with everyday tasks. Of course, in a world where everyone is ADHDer, non-ADHDers would also need some additional support.

The same with being trans. I feel like I need hormone therapy and surgery to be me. In many ways, being trans has a lot in common with being disabled, especially if you have gender dysphoria. Trans* people often need additional medical support, but this doesn’t mean that trans* people are “sick” (which is why I support the de-pathologization of “transgenderism”).

Being trans* is also not about being politically left, progressive, or sex-positive. It is not about being part of any dominant queer subculture. Just like ADHD and autism, is not something that you could be “groomed into” or something that determines your views on economy, religion, and politics. When I was a libertarian right and conservative Christian teen, it didn’t automatically make me cis and neurotypical. It just made me a trans* teen for whom it was more difficult to figure out their identity.

One of the biggest mistakes that the media is making is trying to made trans* existence and trans* rights, especially trans* youth rights look like a part of an ideology. This is why I believe we can all learn a lot from the social model of disability and pro-neurodiversity movement that could really help trans* activists, and LGBT+ movements in general.


You can support Ayman by following @ayman_eckford on Instagram and X (formerly Twitter).

Want to write a blog post for us? Why not find out how by visiting our page on getting involved.

Oct 03
Dee Smith looks directly at the camera while smiling. They have long brown hair and are not wearing a top.

Dee Smith on…..disability advocate work

By Sex & disability, Undressing Disability

Dee Smith on…..disability advocate work

At just 27 years old, disabled model and writer Dee Smith has modelled for London Fashion Week, featured in Cosmopolitan magazine, and launched her own podcast.

We spoke to her about how she’s combining creativity and disability advocacy to champion self-expression and inclusivity for disabled people.

Tell us more about your disability advocacy work. What is it all about and what made you want to start advocating in the first place?

I’m creative. All my advocacy work revolves around things I love and am passionate about, such as creating a photoshoot to model or writing a poetry piece. I went from able bodied to disabled and all of a sudden I noticed how ableist and inaccessible the world is because of toxic stereotypes that are NOT true. So I intended to change that through creative avenues.

You’ve modelled at London Fashion week and share images from many amazing photoshoots via your Instagram. What do you love most about modelling?


The freedom to be creative! I get to be anyone and do anything. I can be artistic, scary, beautiful, sexy, honest. The possibilities are endless! Plus, it inspires others and shows people what I and other disabled people can do. It educates.

How has your relationship with sex and desirability changed since becoming disabled?

It was a journey. I went from thinking I was undesirable and unwanted because of my disability and what society has told us. I had to learn to love my own body and embrace my sexuality again. Learning to love all of me, disability and all, has been a journey.

What is one myth or stereotype about disabled people that you would like to dispel?
That we aren’t sexy, beautiful, and desirable with needs.

What are your goals for the future? Do you have any dreams you hope to realise or upcoming projects you’d like people to know about?

My goals are to advocate more in bigger, more mainstream media where disabled advocacy can be heard and taught. Hopefully branching out into acting. I also have a podcast on Spotify called Training Wheels where I talk to all kinds of people, from all walks of life, and ask them to share their stories.

You can find out more about Dee and support her work via her Instagram @dee_smithxoxo and her podcast “Training Wheels” is available to listen on Spotify.

Apr 23
Girlfriend: two hands clasped together.

I have cerebral palsy and use a wheelchair – how do I find a girlfriend?

By The Love Lounge

The question: How do I find a girlfriend?

Hi

I am 33 years old, I have cerebral palsy and I’m in a wheelchair. I have been trying dating sites for a while. Do you have any suggestions? 

I have been trying to find a girlfriend online but I’ve had no luck.

I have not really had sex but I would like to.

Thanks

Glenn

 

The answer:

Hi Glenn,

Dating sites are notoriously difficult for everyone – but even more so when you have a visible disability! People judge too quickly and swipe left!

I wonder if it would be worth you going to a speed dating event? Obviously I don’t know if your speech is affected by your CP which may pose a barrier when it comes to speed dating.. but that option could be good to actually get to meet people and charm them face to face!

You could look at Eventbrite – things to do in the UK and search within your area?

If you want to explore another avenue to have a sexual encounter but with no relationship involved there is the option of using a sex worker.  This isn’t for everyone and should be carefully considered before doing it as some people feel bad afterwards. Yes, they may feel happy that they’ve lost their virginity but they can feel a bit empty afterwards.  You would need to think about it before pursuing it.  You could go on the TLC Trust site where they have sex workers who are comfortable working with disabled people.

Hope this helps, and I’m sorry we can’t be more specific about dating sites.  We have been doing a campaign on Disabled dating apps so check us out on Instagram Instagram Undressing Disability

If you ever want to have a more detailed chat with us, then feel free to book in one of our Love Lounge sessions on Zoom. https://calendly.com/enhancetheuk/60min?month=

Best wishes for some success,

Zoe

Want to read more Love Lounge queries? visit our Love Lounge page to see all of our questions and their answers. 

Mar 20
Stress awareness month: A neon saying saying Breathe in among green leaves

Stress Awareness Month: How to help reduce stress levels and relax

By Undressing Disability

It’s Stress Awareness Month which aims to highlight the effect that stress can have on our well being, mental and emotional health. Not to mention, it can cause problems with our relationships as the last thing you may feel like doing is being intimate or affectionate.

There are lots of small changes you can make to help improve your mindset. There are some small changes you can introduce to your day to boost your levels of serotonin – known as the happy hormone -to get you feeling a bit better.

1 – Screen breaks for better wellbeing and less stress

Our workplaces are online now more than ever, and this can have a huge effect on our moods and our eyes. Not only that but after we finish work, we flick through Instagram or fall asleep reading Reddit. This can often mean our mental health and relationships suffer from screen time.

Being online constantly can increase your stress levels making you feel more burned out. By slowing down to take time for yourself, you can also improve your sleep, increase focus, and reduce eye strain or headaches. There are plenty of things you can do to unwind instead of insta. Why not try introducing bath bombs and a nice hot soak, reading a relaxing book while curled up, massage with oils or CBD lotions….without or without your partner!

2 – Practise mindfulness

Mindfulness can help you become more aware of your thoughts, emotions, and the world around you. It may also alleviate stress and anxiety by helping you to appreciate life more.

If your mind wanders to future worries or past events, then gently bring your thoughts back to the present. It could be that you take two minutes of your day to pay attention to what surrounds you physically such as the room you are in. It can help you to feel more grounded. Listen to your breathing or try a slow exercise such as tai chi or even meditation.

3- Break the routine

It’s so easy to fall into a routine and it can be quite comforting too. Introducing short exercise breaks or spending time outside can help to get endorphins flowing and give you something to focus on other than what is stressing you out. It may even help you to clear your mind and sleep better.

It doesn’t have to be anything high-impact or stressful but a short walk through a park or down the street can have an effect. If you are unable to exercise, even just introducing a few minutes per day to do something out of your routine which is self-care orientated can help.

4 – Pack a good mood food lunch or office snack

The new year is always associated with healthy eating or going vegan, even giving up alcohol. Although it can be hard to continue to go cold turkey on carbs as the months go on. Making smaller changes can be easier to maintain over the year like adding seeds to porridge or swapping milk chocolate for dark chocolate.

Several foods make great snacks that can boost serotonin which is often referred to as the happy hormone. Bananas, berries, quinoa, salmon or dark chocolate all affect our wellbeing. These could be added to meals or snack times throughout the day.

Interested in how stress can affect your libido? Visit our blog to read more about its effects.

5 – Take up a creative activity

Creative activities can be a really good way of unwinding after work. If you’ve not tried art since A-Levels then there are plenty of other things you can choose from such as knitting, singing, writing songs or poems. Why not join a group locally or set one up?

6 – Add supplements for stress relief

There are so many supplements out there that it can feel overwhelming to start. Some are perfect for alleviating stress or helping you to relax in the evenings. Cannabidiol (CBD) has become popular for helping people to unwind. It is thought to work by interacting with receptors in the body potentially sending signals to the neurotransmitter, serotonin. It’s easy to take as it can be used as oil drops under the tongue or edibles or even as creams rubbed into the skin.

Ashwagandha is a plant and an adaptogen. It is thought that Ashwangha may reduce cortisol levels. Cortisol is the stress hormone produced by our adrenal glands. Reishi and Lion’s Mane mushrooms are also said to have calming effects – both can be taken as a capsule.

 Recognising when you need help

It’s important to recognise when sadness might be a sign of something deeper. If you are struggling with hopelessness, sadness, low mood or lack of sleep then it might be a sign that you have depression.

Reaching out to your GP or healthcare professional is critical as it can help you to improve your well-being.

There are lots of different helplines and websites that you can access:

Love Lounge

Our Love Lounge can help. If you are feeling lonely and need a chat or need a face-to-face, one-to-one session, then get in touch. It’s a completely free service offered by our resident sex and relationship experts who can offer confidential advice and discussion.

Get in touch by emailing Lovelounge@enhancetheuk.org 

Learn more about the Love Lounge by visiting our website

Wellbeing helplines:

Samaritans:  you can contact Samaritans 24 hours a day, 365 days a year by free calling 116 123. You can also email jo@samaritans.org. You can also visit their website.

SANEline:  SANEline on 0300 304 7000 (4.30 pm–10.30 pm every day)

National Suicide Prevention Helpline UK: Offers a supportive listening service to anyone with thoughts of suicide. You can call the National Suicide Prevention Helpline UK on 0800 689 5652 (6 pm to midnight every day)

Campaign Against Living Miserably (CALM):  0800 58 58 58 (5 pm–midnight every day) CALM also run a web chat service on their website.

Shout: Text SHOUT to 85258. Shout offers a confidential 24/7 text service providing support for crisis and immediate help.

The Mix: (Under 25) The Mix on 0808 808 4994 (3 pm-midnight every day), request support by email using this form on The Mix website.

Jan 26
A pink rose in a jar

How do I cope with the power change in our relationship?

By The Love Lounge

The question:

Hi there,

I have become disabled in later life and unfortunately will continue to degenerate.

My wife and I have been together for 30 years and have always had differences in how we approach life.  This hasn’t been such a problem but now that I am less independent it is becoming more apparent. There is a shift in the power dynamic of our relationship that I’m not comfortable with, due to her being the breadwinner. This is having an impact on us sexually too. I almost feel I have to do what she wants and that I’m not considered as much. I think I feel a bit used.

Geoff

 

The answer:

Hello Geoff,

Thanks for your honesty.  It can be really hard for couples to adapt when disability comes into the relationship. It sure can throw out the dynamics that were there before and both of you will be dealing with a whole heap of emotions brought about by the change.

Unfortunately, a lot of disabled people can feel like they’re a burden to family members, friends etc.  It sounds like you and your wife aren’t singing from the same hymn sheet, as it were, and perhaps never have – but it’s now more obvious and creating problems.  I would always encourage checking in with someone regularly asking them how they’re feeling and also getting your feelings heard.  Sounds easy – but not always if the other partner is defensive or doesn’t want to meet you in the middle. 

I don’t know if you feel you can be vulnerable with her – particularly as you say you’re feeling a shift in power.  Usually being vulnerable results in closeness, but equally you need to ensure you feel safe with her (emotionally).  I guess this could play out as having a few small conversations to get her thinking, before you drop the big info about feeling used.  Test the waters first.  Sometimes, if you’re not feeling heard or a conversation quickly escalates into an argument, then perhaps writing a heartfelt letter could be more effective.  She can read and assimilate it when calm and not so defensive.

She may be feeling like she’s carrying the load now and so then gives the air that you should be doing something for her (eg the sexual stuff) and you probably feel like you want to give back/owe her. Maybe let her know that you think she’s doing a great job and you’re proud of her. Maybe she is feeling unseen and is trying to establish a strong role for herself now that your situation is changing. We don’t know if she’s scared of the future as your condition is getting worse. People react in different ways.  This could be pretty complex stuff so if things don’t improve, I would suggest going to a couples therapist where you can both safely express your fears and wishes.

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