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Living with the unknown is both scary and interesting at the same time. There is no one to scream and shout at as there is no support. In turn this makes the world a big and scary place, but this big and scary world can suddenly become a world of possibility!

It seems to be human nature to want a label for things. I am no different. Over the years of living with my unknown, it has gained many names and personalities. The main label which I have given it is “Harriet Little Syndrome”, but the most resent has been Mango disease. The main reason these names have been so vital and important to me over the years has been due to so many skeptics. By giving the unknown a name it has meant that when the skeptics (which have included doctors), who tell me its all made up, I’m able to keep going as I know they are wrong.

The hardest part, as well as having to deal with skeptics, has been all the challenges the unknown brings with it. There is no support for people who live with the unknown and many patients get left isolated, which leads to other problems in the long run. Due to the isolation, I have been very down. However, I have been able to push through it and come out the other side. Don’t let me give you all the impression that the unknown is all dark clouds and rain though – as its not! The unknown is much more like living with the English weather. Some days there is rain and other days there is sun and rainbows. Through living with the unknown I have been able to meet some amazing people and have heard some amazing stories! A lesson I have learnt, over the 10 years of the unknown, is to make the most of the sunny and rainbow days as they don’t happen all the time!

By making the most of my sunny days, and forcing myself to get up and keep going, I have been able to write this blog. It would have been easy for me to have curled up in the corner and given up with life. But by pushing the boundaries of the unknown, I have shot for GB in archery, started writing these articles and continued with life!!

The lesson that I have learnt, and the one you can gain from the film ‘The Greatest Showman,’ is that you have to accept what you have.  Accepting you for you is what will get you through life. If people criticise you for the way you are, you just have to say well… ‘This is me!’ The unknown will not stop me and nor should it stop anyone. Love the sunny days and enjoy the rainbows!!

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