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Meetings and Wheelchair Users… Five Things You Should Know

By Accessibility, Business, Disability, How to guide, Workplace One Comment

1. The correct venue is vital…. Inviting a wheelchair user to a business meeting? Think about where might suit them. It’ll need to be step-free, and if your office is on the 4th floor without a lift, the meeting will be a flop before it’s begun!

2. Parking and Public transport … are also very important. Regardless of where you meet, make sure that there’s accessible parking and/or an accessible tube station or bus stop nearby. If all else fails, offer the person an accessible taxi.

3. Accessible Bathrooms …. Everyone gets nervous before a meeting or interview, and there’s NOTHING worse than being unable to relieve yourself because you can’t even swing a cat in the tiny toilet cubicle.

4. Allow time … We live in a very fast world, where deals are made and meetings are over within minutes. Try and leave a bit more time in your diary for a disabled person. It’s nothing to do with sympathy; it will just allow them time to get a coffee, freshen up and settle without feeling it’s a race!

5. Just ask!… Anything you’re unsure of, just ask! Chances are, the wheelchair user will be able to tell you everything you need to know, so you can prepare for the perfect meeting. Good luck!

For more information about our disability awareness training please visit enhancetheuk.org, follow us on twitter @enhancetheuk and find us on all social media channels – just search for Enhance the UK!

How can we bridge the disability employment gap in the UK?

By Business, Disability, How to guide, News, Workplace No Comments

By Gary Mazin

There has been a lot of press coverage recently about how the Government is falling behind its own targets to have more than 60% of disabled people in work by the end of the decade.

The number of people with disabilities in work is low. Less than half of working age people with disabilities in the UK are in employment, compared to 76% of non-disabled adults. This gap equates to two million disabled people, currently excluded from employment. Why does this gap exist, and how can it be closed?

This is no surprise to me unfortunately, as from my own personal experience I have found that many people and organisations have no intention or wish to employ disabled people. Obviously they will never openly admit this, but from someone who has had their ear to many senior managers in organisations large and small the truth is often more brutal.

Why am I not surprised you might ask? Well I spent more than 10 years working in the recruitment industry, supplying people into the media and creative sector from all ages and levels of experience.

And I have a disability.

So with the combination of the two, I’ve seen how when you look at the recruitment process, disabled people are still being excluded from the system in many ways.

My disability is degenerative and I spent most of my 20s and early 30s hiding my disability from as many people as possible. I did tell my managers and close colleagues, and kept it hidden as much as possible. My reasons were quite simple. As soon as I told someone that I was partially sighted with hearing loss, I could see the immediate reaction and it was rarely positive.

Most of the time people just looked like a rabbit in the headlights and didn’t know what to say apart from “I’m sorry”. You can see their inner monologue shouting at them to ‘act naturally’ or ‘don’t say anything stupid’. By this point I’ve realised that our work relationship has changed, and unfortunately I was never confident or experienced enough to know how to handle these situations myself at the time. There is no training manual given to people with a disability on how to deal with embarrassing or awkward conversations.

I was one of the fortunate people that have a disability and have been mostly in employment for the past 20 years of my life. But the reality is that less than 50% of people who have a disability in the UK are employed. So what can we do? The government seem to think they have a solution, but at the moment it’s not working quickly or effectively enough, as the recent statistics show.
In my opinion a lot of the failings start with poor communication and a lack of understanding. Sure there are more and more organisations that are fulfilling the two tick kite marking system (where they guarantee that an applicant with a disability will get an interview, as long as they meet the standard criteria). This system works for larger organisations usually within the public sector, but there are many many private companies who do not employ this strategy or have any reason to.
When I was working in recruitment I spent a lot of my time helping candidates improve their chances of getting the job they wanted. This was through guidance with their CV, giving them interview tips and techniques as well as general information and help. Having a disability myself I noticed that I was always more astute and aware if someone had a disability or impairment. I found that in most cases people with a disability didn’t know how to broach the subject when applying for a job.
Do they put something on their CV? This is generally seen as the human shop window and people find it very hard to write about themselves, let alone know how they would broach the subject of a disability.

Then there’s the question of whether they tell the company before they have an interview so that the organisation can make reasonable adjustments if needed. The whole area is a minefield and often makes the person with a disability feel more isolated and highlighting their difference even more. I’m sure there were a lot of candidates who had some impairment but was keeping it secret, like I did for so long.

Unfortunately many organisations do not do themselves credit when it comes to the point of encouraging people with a disability to apply for a job. It’s normal for an employer not to have met someone in a wheelchair or a guide dog owner within their work day to day life. They see plenty of information if they’ve watched the Paralympics or seen a cute guide dog programme on the TV. Although one in five people do have a disability, the reality is that you just don’t see enough disabled people in the workplace.

One particular example springs to mind where I was helping a media organisation hire a typesetter to help design their newsletters. I had a very strong candidate apply who met all the criteria of the job and had all the experience required, it helped that she had a warm and friendly personality. She had a visual impairment and needed a screen magnifier.
After speaking to the client they made the reasonable adjustments and she had the interview and took the test on the magnified screen. I was hopeful that she was a strong candidate as in my mind she did everything required. The feedback I received about her really shook me to the core:
“Lovely girl, but I really can’t be doing with all the hassle of employing someone like that. They’re just too much trouble.”

This came from a manager of an organisation with over 1.000 employees in one office alone. How could I respond to that? I was completely flabbergasted and somewhat aghast, especially as they were my client and I had built up an excellent relationship with them. I just didn’t know how to reply. I received an official email half an hour later which explained that the reason they didn’t want to take her application any further was because they didn’t feel she was “a good team fit” and that she didn’t have quite enough experience of working on one piece of software (she did).

When it came to passing my feedback onto the candidate, I decided to try and be honest without intentionally upsetting her. Once I explained about how they just didn’t think she’d be a fit within the team she sighed and said “It’s because of my eyesight isn’t it?” I was crestfallen for her, having had my own knockbacks and rejections due to having a disability I totally understood her resignation of it being about her disability and not her ability to do the job.

The fact remains that the company officially didn’t hire her because of fair reasons, but I know the truth which was quite simply discrimination. During my tenure as a recruitment consultant it became clear to me that discrimination in many forms was still very apparent, and often not subtly hidden. Particularly with regards to disability. I don’t want to generalise but Scope conducted a survey where they discovered that 67% of people actively avoid approaching someone with a disability as they’re afraid of doing or saying the wrong thing. It’s not difficult to transfer that to the workplace and discover that many people quite simply are scared of disability, or the unknown.

Since I’ve started as a Disability Awareness Trainer it’s made me even more aware how far we have to go with regards to breaking down these barriers of communication. Until disabled people are fully welcomed socially and with open and honest communication there will still be a real problem bridging this disability employment gap. I’d like to hope that organisations will start to look at their internal teams and think about whether they’re doing enough to be inclusive. A good start is making sure that all Managers and HR staff know the best way to communicate with someone with a disability. Making the organisations self-aware and looking at how they can improve accessibility, whether it be socially, or physically. Once these barriers start to come down, then we can look at how companies can encourage more disabled people to apply. Until we start being more honest and open about our inexperience and lack of communication skills, this gap will never disappear.

Enhance the UK run disability awareness training workshops that can help your organisation become more accessible and equip your staff with knowledge and skills that will help them communicate better with deaf and disabled people. For more information visit www.enhancetheuk.org

Meet Gav, our newest blogger

By Disability, Lifestyle No Comments

Hi, my name’s Gav, I’m new to blogging for Enhance the UK and truth be told, my story is no different from a lot of other disabled people living in the UK. Well perhaps a little different but I think that’s just complicating things. I just happen to be bold enough to want to share my particular experiences with the interwebs, how delightfully scary.

On to the part where I introduce myself to you. This part does feel a little like an online dating profile to me (I was fortunate enough to meet my fiancée via a dating website, but this is getting decidedly off topic). That impression could just be in my head though. I like making people laugh, I love puppies and I’m a big nerd at heart. Sorry about that, I appear to have distracted myself with talk of dating sites, I do love puppies and I am A picture of Gav. He is smiling.a big nerd at heart. The nerd part owes a lot to my childhood and my complete lack of any sort of confidence or personal skills. Star Trek and computers were my friends, talking to girls intimidated me, much like nearly every other teenage boy from what I gather. “Gav – the teenage years” can be discussed more on a future day. Let’s just say it was a time of chronic acne, obesity and an ill fêted attempt to learn to play the drums for my music GCSE.

As soon as I was able to, I headed off to university in Bradford (Bratfurd to the locals with their delightful West Yorkshire accent). I have never really had a life plan, uni just seemed like the obvious step for me after school. I ended up studying media technology and production which really is a fancy way of saying having fun for three years. I did many a first during my time there, I kissed a girl (and I liked it), I found out what the little symbols on clothing labels mean, I tried drinking lager (wasn’t particularly to my taste). I was fortunate enough to make a lot of really cool memories from my time there, probably one or two not so good ones as well.

I ended up spending the following four years after I finished my degree in Bradford as well and it was during those years two of the biggest events in my life occurred, I was diagnosed with multiple sclerosis and I also got engaged to my girlfriend of five years. Unfortunately we got divorced after five years, I was experiencing depression during that time and I was not the easiest of people to live with because of it. That coupled with the fact we were still kids when we got together and had begun to develop different goals in life in addition to my being unemployed for three of the years we were married for.

Despite the fact I was diagnosed with multiple sclerosis over eight years ago when I was 23, my willingness to discuss it freely with other people and the Internet (check out my YouTube video where I discuss how it went down here https://youtu.be/PI5ij7_O05k), and my ability to joke about it, I still don’t know whether I have fully accepted it. This is not to say that I am unaware or accepting of the limitations my ms insists on imposing upon me or the adaptations I am required to make every day to continue functioning ‘normally’ but more an admission that emotionally perhaps I am still to accept my diagnosis.

I hope that you enjoyed my first blog for enable the uk, I hope to have many future posts for them where you will get the opportunity to know me a bit better 😊. If you have anything in particular you would like me to discuss please feel free to get in touch, until then, don’t fail to be awesome…

Gav

Feeling realistically safe

By Disability, Lifestyle No Comments

This is my first blog post in English, which is about my first trip to a foreign country without any member of my family. Wait! Actually, this was the longest duration I spent away from them – and I have experienced it only twice, yet! So, yes, two weeks ago, I was in Strasbourg, France for 8 days with my best friend, and it was amazing!

Let me start from the beginning.

I am from Turkey, and I have muscular dystrophy. In my case, this resulted in full-body muscle weakness. Therefore, I am a wheelchair user, and I need assistance for my daily routines. However, Turkey really sucks in disability support systems – which can be a topic of another loooong post, and that is why it was really hard for me to even imagine that I could have an independent life. Everyone is surprised when I say this, because I always seem very “grown up” while studying, working, meeting with my friends, engaging in romantic relationships, and overcoming barriers… but obviously, I was feeling like a “child”, and I was safe with my family (interesting to note here that although I was with my close friends having great fun, my first night away from my family ended up with a bad dream, which probably shows how I was threatened by this idea: My head was cut off from my body!), or that was what I believed for a very long time.

After all this time, I realize that my conceptualization of “safety” has changed a lot. At the beginning, I could feel safe only if I knew that someone would be there for me all the time no matter how they were busy, how they were feeling, or what they were thinking. I was expecting from people around me to be aware of my needs, and fulfill them even if I didn’t ask directly – and my world was full of similar unrealistic expectations. Then, I understood that this world of mine was doomed to make me feel unsafe because people had things to do, places to go, and their own lives to live (and yes, without ponies flying around rainbows ☺), which came along with the realization that I had my own life too, except that I wasn’t living it for the sake of being unrealistically safe. Also, I was missing out the possibility to discover myself, and the rest of the world!

I have to admit that change was not sudden. However, I believe that once the smallest idea appears in our minds, it grows little by little on a dark corner, and we don’t even know it until we are ready. Of course, this process gets faster sometimes, with the help of supportive others. At least, that is what happened to me with my decision to go to Strasbourg. I honestly don’t know where I’ve found the courage to apply for ENIL’s study session on sexuality, and to accept my best friend’s offer to go there together. During preparations, I was excited, happy, anxious, and stressful at the same time, and I was worried (and maybe secretly hoping – not a secret anymore, haha) that something would go wrong and we wouldn’t make there. However, on the night we had the flight, we checked ourselves in the airport, took some photos, and shared them on our social media accounts with this note: “Tonight is the night!”.

To be more precise, that night is the night where I’ve begun to grow up a little more. I’ve learned that things usually go better than I imagine with my anxious side, and I am stronger than I think in the face of obstacles. Mainly, this thought was the fuel for the rest of the week. Moreover, I’ve realized that I have many things to say, and many stories to tell (Thank you, if you are still reading ♥). I’ve also met wonderful people giving me support, courage, and inspiration to continue with my “independent” journey. I know that I have a long way to go, but I am not alone at all – which makes me feel safe, realistically safe! Now, I see clearer that I have to take risks, get challenged, and work hard to be a “grown up” and I don’t expect, or at least try not to expect, that things don’t go wrong because they do, and in a way you never imagine – but I also have the confidence and really strong relationships to get over them, knowing that these unexpected negative experiences are also parts of the whole.
A photograph of the author. She is smiling.
It was really hard to conclude the week in Strasbourg, and similarly, it is hard to conclude this post. I just want to say that I’ve written it because I wanted to go through the most important journey of my life, to always remember how I felt before and after, and maybe to reach for others who have similar experiences. I also wanted to thank once more first to my best friend for giving me confidence that we could manage all, and for staying together in whatever we lived throughout this adventure; and second to the wonderful people I’ve met in Strasbourg for touching my life deeply. I will miss every second of this week – and I will close this file before I get too emotional.

Fundraising Challenge Climb Over the O2

By Disability, Lifestyle No Comments

We at Enhance the UK are delighted to announce our fundraising challenge Climb over the O2. Including 12 fabulous people who are all raising money to help promote our important and valuable work supporting young disabled people across the UK.

On 25th June 2016 we have a great group taking part in the climb challenge. It is eclectic mix of people many with an impairment, including Mary Russell who appeared on Channel 4 in The Undateables. Mary has dwarfism and for her this is a real physical challenge, but she wants to prove that having dwarfism or any disability should not stop you from fulfilling your personal goals. Her fundraising page is here:

https://www.gofundme.com/264wfvg

Also Carley Owen is taking the challenge onto the next level of commitment. She’s putting all her supporters names in a hat, and the lucky one she picks will have their name tattooed alongside the Enhance logo on her derriere. Yes, she really is that committed and crazy!

https://www.justgiving.com/fundraising/carley-owen1

Isabella is 13 and she’s taking part with her friend Gaya. Isabella has juvenile arthritis and uveitis and she wants to raise awareness of hidden disabilities and prove to herself that although she’s struggled with physical challenges she can overcome any hurdle with the help and support of her friends and family.

There are many more personal stories from everyone taking part, so if you’d like to know more then please get in touch by contacting Jennie at jennie@enhancetheuk.org or Gary at gary@enhancetheuk.org or call 07930 289 162

Please promote our challenge and help us improve the lives of young disabled people across the UK.

Interviewing a deaf person for a job?

By Business, Disability, How to guide, Workplace No Comments

Do you work in HR? Are you interviewing a deaf person for a job? Read our tips

• Don’t spend half the allocated time showing your fingerspelling skills that you learnt from a deaf girl at school when you were seven…. Yes this really does happen and the fake smile we have to put on hurts!

• Please avoid talking too slowly and over enunciating your words … it doesn’t help us understand you and you look just like Wallace from Wallace and Gromit!

• Please look at us when you speak to us. If you’re using a BSL interpreter don’t look at them… Errr hello! We’re over here!! Please look at us when you speak to us, you are interviewing us after all!

• Don’t tell us how amazing we are that we have managed to overcome so many challenges. Ok we know we’re fab, you know we’re fab, so give us the Job! Seriously though it sounds like you pity us and no one wants that.

For more information about our disability awareness training please visit enhancetheuk.org, follow us on twitter @enhancetheuk and find us on all social media channels – just search for Enhance the UK!

Planning a trip in your wheelchair? Read our top tips for a wheelie good time

By Accessibility, Disability, Emily Yates, How to guide, Lifestyle No Comments

Five Tips for Wheelie Great Travel

1. Never underestimate the power of planning…. Not all hotels on the Internet really are as wheelchair friendly as they say they are. Do your research and pick up the phone if necessary.

2.Knowing the local lingo always helps … even if it’s the odd ‘please’ and ‘thank you’, or being able to direct a taxi driver ‘left’ or ‘right’, this will make you friends, save you time and money!

3.Checking out transport is a priority …. There are many places that have accessible attraction and accommodations but appalling transport systems. Budget for private drivers or cabs if necessary!

4.Help is more available that you may think … When alone, trying to navigate strange roads, signs and attractions in my wheelchair, I’ve often been inundated with people offering to help me and show me around. Less accessible places can definitely create lasting friendships.

5.Make sure you’re aware of any perks that may come your way… Whether you’re going to a cinema or theme park, alone or with company, it’s very rare that concessions are not available wherever you are in the world. Make sure you use them!!

Roll Models

By Disability, Lifestyle No Comments

Exotic Freak, Incapable of participation in every day life and Un- sexual these terms define me, well at least according to my A – level media teacher.

I on the other hand would describe myself as an active wheelchair user turned activist who is the founder and co director of The Disability Campaign. Alongside this I am studying music, theatre and entertainment management at the number one arts university in the UK and manage and consult for international artists and millionaires.

But how is the rest of the world meant to see the strong, independent women I am if the mainstream media and even our education systems do not reflect the ability largest minority group in the world the incapable, un – sexual exotic freaks or to be politically correct and quite frankly a decent human being the 11 million people in the UK alone with a mental illness and or a physical or learning disability/difference.

And if we were to bring in the social model of disability which states ‘People with impairments are disabled by the fact that they are excluded from … mainstream of society as a result of physical, organisational and attitudinal barriers’ then we are basically talking about the entire human race. The entire human race that are being brainwashed into thinking perfection exists when the truth is we all have different interests, preferences and abilities that make us who we are.

Think about it, when was the last time you felt represented in a piece of media ? Since I am probably the least sporty person on the planet Paralympians are off limits and so my next reference point in The Undatables on channel 4 and I most definitely am not undatable.

This brings me to the title of this piece ‘roll models’ and yes this play on words might seem like it only applies to wheelchair users like myself but if we apply it the broader context I want to use my
weekly column within Liability magazine to provide a platform for the real role or ‘roll’ models of the world.

My story

By Disability, Lifestyle No Comments

Here I am, 20 years old laying on my bed, with the blankets and my medical pillow comforting me. Heavy painkillers at the table next to me, and my walker waiting for me to get up. I’m staring at my laptop screen hoping that I read it wrong, that it was a mistake.

Eleven years old, ginger hair, freckles, braces and being insecure made me the ultimate doormat
of middle school. When the call for getting vaccinated for cervical cancer came the girls in my class weren’t excited at all.

I remember them shouting “It’s not being studied enough”, “only dumb girls go to get vaccinated”.
As always I muted the sound of their commanding voices and went home. My mom explained to me what cervical cancer means and we decided together that I would get the vaccination.

A big building, often used for several events where people go to for fun and to spend their money was turned into a clinic for thousands of young girls. Inside there were rows and rows with fences and at the end of every row stood a small table, with a nurse in blue ready to vaccinate girl after girl at a high tempo. There I stood at the back of the line, holding my father’s hand while girls were passing out and others heavily cried.

“Go sit down and be brave, it’ll be over before you know it” my dad said in his loveliest voice.
I sat down on the chair, looked at all the hundreds of girls still waiting in line.
I closed my eyes and didn’t move a muscle.

After that we went home, just like the other two times. After the second time getting vaccinated, I felt how my body started to change. I was more tired, my muscles weakened and I experienced pain on a daily basis. It was very difficult for me to get out of bed and go to school.
We blamed it on the weather, my period and stress. There was never a doubt in our mind that we made the wrong decision.

Today my mom sent me an article about thousands of girls who were vaccinated with the HPV vaccine, the Human Papilloma Virus vaccine.

In England alone, 8228 girls experienced side effects due to the HPV vaccine and only 2587 were seen as serious.

In reality there are many more cases, just like mine who didn’t blamed it on the vaccine and just moved on while thinking that their bodies failed.

In the article there’s a reference to dr. Manuel Martinez- Lavin, who specializes in chronic pain treatment. He wrote that doctors should be aware of the possibility that the HPV vaccine and illnesses such as POTS or Fibromyalgia could be related.

Fibromyalgia, the illness I was diagnosed with last year, the illness that changed my life.

After the vaccinations my health seem to worsen. I used to love to play outside, go to school, ride my bike and just being young. I had to stop my education and my hobbies. Time passed by and I couldn’t even do the things I love and was slowly losing my independence. Now here we are. There are days I’m bedbound to the pain and the fatigue, unable to get up on my own. Due to the health care system in the Netherlands my girlfriend is forced to be my caretaker.

In a couple of months I’ll get my wheelchair and I’ll be able to do the things I love again.

Please share my story.

I know there are a lot more girls out there who are suffering similar side-effects as mine due to the vaccine and I hope that this article will shine a light on the situation.
Hopefully together we’ll be able to find answers and justice for us all.

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