Endometriosis is a disorder where the tissue that grows inside the uterus, also grows on the outside. This tissue behaves like endometrial tissue would and breaks down during each menstrual cycle. However, it has no way to exit the body which has painful effects including irritation, spasming, painful periods, and excessive bleeding.
Endometriosis and sex 
Pelvic pain disorders such as endometriosis can have a huge impact on a person’s sex life.
Often people will find themselves choosing between avoiding sex and losing intimacy with a partner. Or having sex resulting in a lot of pain.
On top of this, medication taken for endometriosis can lead to a lack in sexual desire and fatigue. This results in the feeling of guilt due to someone being unable to fulfil their partners sexual needs.
Tips
We have collated some of our top tips you can implement with both your partner and on your own.
1)First of all, you should never feel like you need to have sex if it is painful. Feelings of guilt are normal but don’t allow it to pressure you into something you are not ready for.
2) Schedule sex. A common myth is that sex must be spontaneous for it to be sexy, but this isn’t the case. Planning sex allows you to consider your pain relief and prepare making it more enjoyable.
3) Intimacy doesn’t need to be sex. It can be hugging, kissing, spending alone time with your partner. For example, what is your partners love language? This is a great way to show your partner some love without being physically intimate.
4)Being open with your partner about how your pelvic pain affects you can bring you both closer together and help them understand your needs. Communication is key to a healthy relationship so get talking!
5)For some, acupuncture can help with vulva pain.
6)Pelvic massages can be a great way to relieve pelvic pain (which we have a great resource on!)
Resources
‘Wait, what? Pelvic massages exist!’
In this resource, Jo who is a massage therapist explains what sensual massages are and how they can help with pelvic pain. She also gives some tips for performing one yourself at home.
Where to access:
UndressingDisability Hub under the ‘therapy and counselling’ resources section.
Podcast: For those who prefer to listen, we also had Jo on our podcast!
Sex, Chronic Pain, and Fatigue
This resource explores the difficulties of dealing with chronic pain and fatigue whilst having a sexual relationship. Including our top tips for maintaining a healthy sex life.
Where to access:
UndressingDisability Hub under the ‘sex and intimacy tips’ resources section.
Top Tips for Self Treatment of Lichens Sclerosus, Vulvodynia and Endometriosis
Alex from ANA therapies, is a Women’s Health Physiotherapist also specialising in Visceral therapy. She has put together a ‘Self Help’ guide for people struggling with pelvic pain.
Where to access:
UndressingDisability Hub under the tips for health professionals section
Socials
Make sure to follow our socials where we will be collaborating with other people who have experience with vulva pain, experts in the field, and providing further support.