Where should I start? I’m Sarah, I’m a Scouser living in Northamptonshire with my boyfriend and a broken body.
I have Ehlers-Danlos Syndrome (EDS), Fibromyalgia and Postural Orthostatic Tachycardia Syndrome (PoTS) – basically, I’m in a lot of pain. I dislocate, I’m knackered all the time and my heart races causing blackouts and dizzy/shaky spells – sounds marvellous doesn’t it?
There’s a lot more to it but I’m sure we can discuss that another time.
I heard about Enhance the UK on Twitter, they wanted stories from disabled people about their sex lives and relationships; I was totally up for that. I had a few men from hell that I could write about. I emailed Jenny as soon as I scoped out their website and had a look what they were all about.
I’m all about raising awareness; I work for the HMSA on the social media team and also run local group meetings for people with a hypermobility syndrome in the Northants area. I write fiction and a blog – I’m all about the words.
I’ll be appearing on Enhance’s blog every month so thought I’d share some random facts about me:
I can’t usually do that serious thing. You know the deep and meaningful conversation? Yep, that and I don’t work well together; I end up making a really bad joke or staring at my phone.
I have a Masters in English, *bows* thank you, thank you. My dissertation was on the commodification of the disabled body in the Victorian freak show. I was and still am very interested in that topic.
As from my previous point – I like weird stuff.
Crime fiction rocks my wheelchair. Crime novels, detective shows, crime thrillers, Criminal Minds, serial killer type things. I guess this leads back to my last two points.
I should probably branch out more.
I have an unhealthy amount of makeup. I’ll say no more on this.
Pyjamas are the way forward in life.
Lists are good.
I’ll end it there, see you next time,
Sarah x