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Cervical cancer testing: A ball of pink and purple cells

Researchers aim to improve access to cervical cancer screening for physically disabled people

By Disability, Sex & disability, Undressing Disability

Researchers aim to improve access to cervical cancer screening for physically disabled people

 

A team of researchers at Keele University that includes psychologists, GPs and nurses, are leading an innovative new study which aims to help physically disabled women better access smear tests. It is hoped that this will reduce cervical cancer rates.

The testing, which is also known as a smear test, can be really difficult for many people. It can be physically challenging for many people with a cervix and sometimes impossible. Not only that but misconceptions about disabled people can make access even harder.

Cervical cancer testing rates

There are more than 7 million disabled people in the UK who may be likely to have a higher risk of delayed diagnosis and dying from cancer due to lower screening uptake.

Removing these barriers could help ensure equal access to cervical cancer prevention. It could also mean early detection of cervical cell changes therefore reducing the number of deaths from cancer.

The study has been funded by the National Institute for Health and Care Research (NIHR). It is being conducted in collaboration with Jo’s Cervical Cancer Trust and patient representatives. The study will involve interviews and surveys with people who have physical disabilities or conditions that make cervical screenings challenging. The team will also interview GPs, nurses and reception staff to gain an understanding of the barriers posed by the process which will help to highlight solutions.

We are very grateful to have received funding for such an important and largely overlooked issue and we look forward to working with stakeholders to improve the cervical screening experience for physically disabled women and people with a cervix, said Lead researcher Dr Sue Sherman, from Keele Universitys School of Psychology.

Everyone who is eligible for cervical screening should be able to access the test. Too often we hear from women who are unable to attend as a result of a disability or long-term condition, and this should not be the case. Were thrilled to be teaming up with Keele University to help identify and address some of the barriers and stigmas that exist and ensure more women can reduce their risk of cervical cancer,” added Samantha Dixon, Chief Executive of Jos Cervical Cancer Trust.

Cervical cancer is caused by a virus called human papillomavirus (HPV) that causes changes to cells in the cervix. If this is left untreated, the HPV infection may turn into cervical cancer. Smear tests can help to determine treatment before cells turn cancerous if HPV is detected.

How to get involved with the cervical cancer study

Do you have a physical disability/ impairment or long-term physical condition? Does this mean that cervical screening is hard or impossible for you to take part in?

Would you like to join our project group? What does this involve?

  • This is a virtual study and will involve you attending a few online meetings throughout the project:
  • You will be reimbursed for your time.
  • The project is expected to last 2.5 years

If you are interested take in the road, please complete the following form/ scan QR code:

https://forms.office.com/e/bVJAmWveyb

Or

For further information an expression of interest, please e-mail doctor Emma Kemp (e.j.kemp@keele.ac.uk)

 

Read more on cervical cancer and Deaf awareness

#CervicalScreeningRedTape campaign

By Disability, Undressing Disability

Our #CervicalScreeningRedTape campaign aims to highlight the fact that many disabled women are finding it difficult to access cervical screening.

The Issues

Common barriers to accessing cervical screening are:

  • Disabled women not being offered a smear test as it is often assumed that they are not sexually active and are less likely to need a test.
  • Physical barriers such as a lack of non-adjustable beds in GP surgeries.
  • Fear. Due to a previously negative experience. Or a self-consciousness as their body may differ to what they believe medical staff are used to seeing.
  • Expense. Often disabled women have to travel further than their local surgery to attend an accessible clinic.

Potential Solutions

What can be done to improve access to smear tests for disabled women? Below are four potential solutions.

  1. Recognise that disabled adults can enjoy an active sex life and offer as standard cervical screening and sexual health tests.
  2. Ask what an individual’s needs are. If your surgery does not have accessible facilities that meet the needs of a disabled patient, then have a procedure in place where you can offer an alternative location. This saves both you and the disabled woman a lot of time and effort phoning around. Read Emily’s blog for a real-life example. 
  3. Realise that standard procedures won’t work for everyone. For example, due to physicality it may be easier for a woman to have a smear lying on her side rather than on her back. We are all different, and often know our bodies well. So if it’s feasible to do things differently, be willing to give it a try.
  4. Most women are apprehensive about having a smear test but for many disabled women there is an extra layer of nervousness. Reassurance prior to the test being booked can help alleviate this fear.

We fully appreciate the challenges our NHS is facing during the pandemic and know that wait times may be longer than usual, however we hope our solutions can become best practice.

Useful Resources

Undressing Disability Podcast

Dr Larisa Corda OBGYN and presenter Sam Renke are guests on Episode 2 of our Undressing Disability podcast. Joined by our CEO Jennie Williams they share personal experiences of the issues around accessing cervical screening raised in this #CervicalScreeningRedTape campaign.

 

Blog

Emily wrote about her experience as a wheelchair user of trying to access her first ever smear test in this blog article.

The Undressing Disability Hub

Last year we launched our Undressing Disability Hub which is free to join. It is full of free resources on topics relating to sex and disability. Members include professionals working in the fields of medicine, psychology, and care homes. As well as sex educators and those searching for a safe network to learn and share information on the topic of sex and disability.

Sign up for free today.

Worried about Cervical Screening?

Jo’s Cervical Cancer Trust is a charity which provides information and support on the topic of cervical cancer. Their website https://www.jostrust.org.uk/ is full of valuable insight and they do an incredible job raising awareness and saving lives with their work.

#CervicalScreeningRedTape 

Stay Up To Date

Follow our campaign on social media on twitter @ETUKUndressing and Instagram @UndressingDisability. #CervicalScreeningRedTape

 

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